Albinism Life podcast

Auteur(s): Albinism Fellowship UK Kristina
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  • Résumé

  • Welcome to Albinism Life! Brought to you by the Albinism Fellowship, this podcast dives into all things albinism-related. Hosted by Kristina Venning Rose, co-chair of the charity, we’re here to celebrate the highs, acknowledge the challenges, and share incredible stories from our community. Join us as we explore personal journeys, hear from medics about the latest in research, vision, and genetics, and give a voice to everyone in our amazing community. If you’d like to get involved or share your story, we’d love to hear from you! Drop us an email at info@albinism.org.uk.
    Copyright 2024 All rights reserved.
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Sciences sociales
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Épisodes
  • Albinism 101 - The basics of albinism

    Albinism 101 - The basics of albinism
    Jan 17 2025

    Kristina Venning Rose sits down with Dr Jay Self, Paediatric ophthalmologist, and leading Albinism expert from Southampton UK. He explains the basics of albinism in an easy-to-understand way.
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    20 min
  • Albinism Life “Blending in at the opera”.

    Albinism Life “Blending in at the opera”.
    Jan 17 2025

    Luke has albinism and chats to Kristina Venning Rose about his experiences growing up, looking different, accepting himself and having an amazing career designing cruise ships which takes him all around the world. Find out about what happens we he goes to the opera!
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    36 min
  • Albinism Life - “I have been mistaken for colonel Sanders”

    Albinism Life - “I have been mistaken for colonel Sanders”
    Jan 17 2025

    Ben is a student doing a degree to become a professional musician - he is a drummer. Ben talks about the challenges of living independently, his dislike for crossing roads and sunlight! We chat about falling off stage and the seasonal names we get called!
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    37 min

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