On this BARE It All Coffee Talk episode, Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who’s had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and dad.

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."

Connect with us:

• ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

#BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk

On this episode of BARE It All Coffee Talk, host Stephanie welcomes her oldest daughter, Alexis. Together, they explore the impact of biliary atresia on siblings and what has helped them cope. The entire family faces the challenges of BA, each in their own way, but, Alexis reflects on how, 11 years after her sister’s diagnosis, she has cherished memories—even amidst the difficulties.

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."

Connect with us:

• ⁠⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

Music by ⁠⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

On this episode of BARE It All Coffee Talk, host Stephanie is joined by Brandi to discuss their journey with Biliary Atresia. They candidly share their experiences, including the challenges and triumphs along the way. If you've faced complications or want to understand this condition better, this is an episode you won't want to miss!

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."

Connect with us:

• ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

On this episode of BARE It All Coffee Talk, host Stephanie is joined by President Jen for an insightful discussion about COTA (Children's Organ Transplant Association). They chat with COTA President Rick and two families who have benefited from COTA’s support. Please tune in to hear their personal medical journeys and discover how COTA has made a difference in their lives.

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠contactus@bareinc.org⁠⁠⁠. Let's amplify our voices and foster understanding together."

Connect with us:

• ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

Music by ⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠ from ⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

In this episode of BARE It All Coffee Talk, Stephanie sits down with fellow board member Maria to explore the crucial role of advocacy in the biliary atresia journey. Whether you're a parent or a patient, effective advocacy can significantly impact your medical experience. Join us as we share our insights and experiences to support and guide others on their journeys.

The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

⁠⁠Biliary Atresia - UCSF transplant surgeons⁠⁠.

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠contactus@bareinc.org⁠⁠. Let's amplify our voices and foster understanding together."

Music by ⁠⁠Magnetic_Trailer⁠⁠ from ⁠⁠Pixabay⁠⁠

Connect with us:

• ⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life.

The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

⁠Biliary Atresia - UCSF transplant surgeons⁠.

If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠contactus@bareinc.org⁠. Let's amplify our voices and foster understanding together."

Music by ⁠Magnetic_Trailer⁠ from ⁠Pixabay⁠

Connect with us:

• ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠ to learn more about how they can help.

Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex’s journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience.

The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

Biliary Atresia - UCSF transplant surgeons.

If you or someone you know has experience with biliary atresia and are willing to share your journey publicly to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify our voices and foster understanding together."

Music by Magnetic_Trailer from Pixabay

Connect with us:

• ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠ to learn more about how they can help.

Join Stephanie and Maria as they delve into the crucial topic of newborn screenings with special guests Anna Grantham and Aman Dhami-Judge. Their insightful conversation sets the stage for the upcoming BARE 2024 Symposium, where experts will further explore this vital aspect of infant health.

To learn more about Hunter’s Hope and their mission, visit their website here or connect with them on Facebook. You can also tune in to their podcast, 'Light of Hope,' available here.

Understanding Rare Diseases:

• Krabbe Disease: Krabbe disease is a rare, inherited metabolic disorder characterized by the accumulation of harmful lipids in various cells and tissues, ultimately leading to the destruction of brain cells. Learn more about it here.

• Biliary Atresia: Biliary atresia affects approximately one in 10,000 children, with a higher prevalence among males and Asian and African-American newborns. Contrary to popular belief, it is not an inherited disease. Find out more here.

Share Your Story:

If you or someone you know has experience with biliary atresia and would like to share your journey to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify voices and foster understanding together.

Connect with us:

• ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

• ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠

Support for Life-Saving Transplants:

If your child is in need of a life-saving liver transplant due to biliary atresia, reach out to The Children's Organ Transplant Association (COTA). They provide support to families, easing the financial burden of transplants at no cost. Call COTA today at 1-800-366-2682 or visit www.cota.org/getstarted for more information.

Music Credits:

Background music by Magnetic_Trailer from Pixabay.