Welcome to the Season Close Out of Black Blood Heals. In today's episode, our host, Tamara Weston, reflects on the impactful conversations and insights shared this season. She highlights the diverse range of guests, from physicians discussing the need for more diverse stem cell donors to touching stories of patients and donors.

Throughout the season, Tamara and our guests have highlighted the importance of joining the registry and the significant impact individuals can have on someone's life with a stem cell transplant. The conversations have emphasized the necessity for people to make informed decisions about joining the registry and understanding the potential impact on their lives and the lives of others.

Tune in to Black Blood Heals to gain a deeper understanding of each person's critical role in saving lives through the NMDP registry.

We hope this season has inspired you to learn more about the life-saving potential of joining the NMDP registry and consider how you can make a difference.

Stay tuned for the upcoming Season 5, where we will continue to bring you compelling stories, valuable insights, and resources on ways to be a change agent and save lives in your community.

Get Involved

• Join the Donor Registry: https://bit.ly/3UGiU1S
• Visit NMDP for resources: https://bit.ly/48moDxd

Black Blood Heals is produced by Adode Media www.adodemedia.com

Welcome to Black Blood Heals, where we highlight the impactful stories of blood stem cell donors.

In today's episode, our host, Tamara Weston, sits down with Eboni Nash, a recent donor, to walk us through her donor journey and share insights into the experience of being a stem cell donor. Eboni joined the registry in March 2020, during the early days of the pandemic, and received the call to donate in August 2021, just a year and five months later. She generously shares her entire journey, from joining the registry to going through the bone marrow donation process, and how she has become an advocate for getting more people involved in the registry. Tune in to gain valuable insight into the donor experience and the impact of joining the NMDP stem cell donor registry.

Listen to Eboni's inspiring story and advocacy for increasing registry participation.

Get Involved

• Join the Donor Registry: https://bit.ly/3UGiU1S
• Visit NMDP for resources: https://bit.ly/48moDxd

Black Blood Heals is produced by Adode Media www.adodemedia.com

Welcome to "Black Blood Heals," the podcast spotlighting the cutting-edge advancements in treatments for inherited blood disorders. In today's pediatric-focused episode, we are honored to have Dr. Staci Arnold, a pediatric hematologist and oncologist, join our host, Tamara Weston, to discuss groundbreaking therapies reshaping the lives of young patients. Dr. Arnold brings a wealth of expertise from her work with children ranging from newborns to young adults, mainly those battling sickle cell disease and bone marrow failure syndromes. Today, we're zooming in on the complexities of sickle cell disease, the significance of early detection and ongoing research into gene therapy, and the importance of holistic care including pain management and encouraging physical activity within individual limits.

During our deep dive, Dr. Arnold shares insights on the necessity of newborn screening for conditions like sickle cell disease, emphasizing the critical role early intervention plays in managing this inherited disorder. With a passion for patient education, this episode highlights the misleading nature of initial sickle cell testing and the varied expression of symptoms over time, while touching upon the typical signs in toddlers and newborns.

Dr. Arnold advocates for empowering families with knowledge about when to manage episodes at home, and when to seek professional medical help. As we explore the evolution of understanding and treatment options for sickle cell and blood cancers, it’s clear that Dr. Arnold's work reflects the mission at the heart of "Black Blood Heals": to bring hope and healing to the youngest patients facing these challenging conditions. To learn more about blood stem cell therapy, transplantation, and to consider joining the fight against blood disorders, visit nmdp.org and become part of a movement that changes lives.

Get Involved

• Join the Donor Registry: https://bit.ly/3UGiU1S
• Visit NMDP for resources: https://bit.ly/48moDxd

Black Blood Heals is produced by Adode Media www.adodemedia.com