Cris Edwards is a person who experiences a disability known as Misophonia. What is it? Cris is best at explaining. However, in part, this condition causes people who have it to react to sounds and other stimuli most of us take for granted and can ignore. As with many of our guests, I met Cris through our own Sheldon Lewis. By the way, because of Sheldon, Cris and his nonprofit use accessiBe. However, I get ahead of myself. Cris went through school and, in fact life with manifestations of Misophonia. As he tells us, he also has ADHD. Many people with misophonia do exhibit other conditions as well. As Cris explains, until fairly recently this condition was not even recognized nor taken seriously. Cris tells us how he lived his life with this condition and how today he is dealing with it somewhat better than before. In 2021 Cris founded soQuiet, a 501C3 corporation to help those with Misophonia. We will get to learn how even AI today is helping people deal with this issue. Cris and I talk a lot about not only Misophonia, but how people can better exercise their minds to learn how better to conduct introspection and exercise their brains to better take care of their whole world. I hope you like what Cris has to say. Lots to think about here. About the Guest: Cris Edwards, MFA CPS, is the founder of soQuiet, a 501[c]3 tax-exempt nonprofit organization dedicated to providing free and accessible advocacy, resources, and support for all people whose lives are affected by misophonia, a multi-sensory sensitivity disorder. Cris has struggled with what we now know as misophonia for over 40 years, since way back in the early 1980s, decades before there was any recognition, or even a name, for this condition. Years later, when connecting the dots in his life looking backwards, Cris can see just how much misophonia had an impact on his life, from affecting his schooling to causing barriers to employment and more. Cris was able to complete college and grad school, earning a Master of Fine Arts in Directing. But, he always also wanted to help people to live better lives with a disorder like misophonia. During the COVID pandemic, since there was no live theatre happening for an unknown amount of time, Cris decided to start a nonprofit which focused on misophonia and that worked to be accessible to all and to approach advocacy from the viewpoint of someone with lived experience of struggling with misophonia. soQuiet was born and has grown quickly in the four-ish years of its existence. soQuiet has provided many "firsts" to the misophonia community, sometimes called the misosphere. Cris and the soQuiet team launched the first misophonia student research grant program, the first comprehensive peer support program for misophonia, and has mailed thousands of free misophonia information cards to six continents at no charge, among many other successes. Cris is also active in the recovery community having gotten sober in 2017. He is a Certified Peer Specialist [CPS] as well as an occasional theatre director and designer. Cris lives with his wife, Michelle, and two cats in St. Louis, Missouri. Ways to connect with Cris: Website: soQuiet.org On all major social sites [Facebook, Instagram, TikTok, etc.] under the username: soquietorg About the Host: Michael Hingson is a New York Times best-selling author, international lecturer, and Chief Vision Officer for accessiBe. Michael, blind since birth, survived the 9/11 attacks with the help of his guide dog Roselle. This story is the subject of his best-selling book, Thunder Dog. Michael gives over 100 presentations around the world each year speaking to influential groups such as Exxon Mobile, AT&T, Federal Express, Scripps College, Rutgers University, Children’s Hospital, and the American Red Cross just to name a few. He is Ambassador for the National Braille Literacy Campaign for the National Federation of the Blind and also serves as Ambassador for the American Humane Association’s 2012 Hero Dog Awards. https://michaelhingson.com https://www.facebook.com/michael.hingson.author.speaker/ https://twitter.com/mhingson https://www.youtube.com/user/mhingson https://www.linkedin.com/in/michaelhingson/ accessiBe Links https://accessibe.com/ https://www.youtube.com/c/accessiBe https://www.linkedin.com/company/accessibe/mycompany/ https://www.facebook.com/accessibe/ Thanks for listening! Thanks so much for listening to our podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below! Subscribe to the podcast If you would like to get automatic updates of new podcast episodes, you can subscribe to the podcast on Apple Podcasts or Stitcher. You can subscribe in your favorite podcast app. You can also support our ...
