In the third episode of "In the Making," host Shilpa continues her heartbreaking journey after receiving the devastating diagnosis that her daughter, Theia, had the rare genetic disorder GM1 Gangliosidosis.
Shilpa reflects on how her life was suddenly filled with uncertainty, questions, and grief as they learned to care for Theia. She emphasizes the importance of seeking support and prioritizing mental and physical health, recognizing that caregivers need care too. The episode details the gradual decline in Theia's abilities and the need for hospice and hospital care. Ultimately, Theia peacefully passed away in January 2018, leaving Shilpa and her family to grapple with grief and questions about genetics.
Shilpa acknowledges her privilege and the need for increased awareness and empathy surrounding rare genetic disorders, particularly for women and families in similar situations.
She hints at the next episode, where she'll discuss how this experience shaped her life and relationships.
