LJ Amaral is a Clinical and Research Dietitian specializing in Oncology at Cedars-Sinai Hospital in Los Angeles.  She is currently doing research on the ketogenic diet as an adjunct treatment to the standard of care for brain cancer patients.  Find LJ at https://www.ljamaral.com

Ethan Russo, MD, is a board-certified neurologist, psychopharmacology researcher, and former Senior Medical Advisor to GW Pharmaceuticals. He served as study physician to GW Pharmaceuticals for three Phase III clinical trials of Sativex.

He is author of Handbook of Psychotropic Herbs, co-editor of Cannabis and Cannabinoids: Pharmacology, Toxicology and Therapeutic Potential, and author of The Last Sorcerer: Echoes of the Rainforest. He was founding editor of Journal of Cannabis Therapeutics, selections of which were published as books: Cannabis Therapeutics in HIV/AIDS, Women and Cannabis: Medicine, Science and Sociology, Cannabis: From Pariah to Prescription, and Handbook of Cannabis Therapeutics: From Bench to Bedside. He has also published numerous book chapters, and over thirty articles in neurology, pain management, cannabis, and ethnobotany. 

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In this live salon from 9/20/22 on Clubhouse, Ethan, Dr. Russo and LJ discuss the current research and opportunities presented for brain cancer patients when it comes to diet and nutrition, specifically the Ketogenic Diet and the use of cannabis to treat brain cancer.

This conversation was hosted with the support of xCures, learn more and signup for their xINFORM platform that pairs patients with clinical trials at www.xcures.com/brain

Learn more about LIFECHANGES at www.ourlifechanges.co and the Love Extremist Project at www.extremist.love

Greg Link is an 8 year GBM survivor, athlete, entrepreneur and investor originally from New York and living in Miami and Los Angeles.  Learn more about Greg here: https://people.com/health/greg-link-gbm-awareness-day/

Devin Ryan is living with Glioblastoma and uses the Optune helmet to treat her tumor.  She loves being outdoors, lightsaber fencing and connecting with others facing a similar diagnosis.

Anne Donguy is the mother of a 12 yo boy named Anatole who was diagnosed in May 2018 with a Diffuse Midline Glioma (DMG) on the thalamus. At that time, the tumor was inoperable, incurable, and they were told soon enough after radiotherapy and a first line of chemo that nothing could be done.  Now, with the help of xCures and the Musella Foundation, Anatole found a clinical trial drug he could use and his tumor shrunk by more than 80%. Anatole, despite important sequels (hemiparesi, bad vision, dizziness, fatigue), is a little guy who goes to school, has friends, plays checks and lives a life as normal as possible. He is a little miracle.

Anne wrote a novel (in French) that is inspired by their story, it is called an exceptional summer.
http://www.denoel.fr/Catalogue/DENOEL/Romans-francais/Un-ete-exceptionnel

Leslie Jared is a 15 year cancer survivor who spent 4 years as a nurse advocate for other cancer patients before joining ChadTough.org and becoming a DIPG Navigator, helping patients and families find treatments for this rare tumor that affects young children.  Find Leslie at www.mydipgnavigator.org

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In this live salon from 9/13/22 on Clubhouse, Greg, Devin, Anne and Leslie discuss their experiences as patients, caregivers and advocates living through GBM and DPG.

This conversation was hosted with the support of xCures, learn more and signup for their xINFORM platform that pairs patients with clinical trials at www.xcures.com/brain

Learn more about LIFECHANGES at www.ourlifechanges.co and the Love Extremist Project at www.extremist.love

Caroline Catlin is a writer, photographer, and grief worker who believes in the power and impact of shared truths. Her writing has been featured in The New York Times, Teen Vogue, Longreads, Healthline, Glamour, and elsewhere. Her photography & film can be found in Boston Globe, AliveNow, The New York Times, and Healthline. Caroline’s background in behavioral health and developmental trauma has inspired her to incorporate art into the process of caregiving and advocacy, as well as to work on reforming the way health, illness, and disability are portrayed in the media. Her TED talk, Why I photograph the quiet moments of grief and loss, has been viewed over 1 million times. She is fueled most by connection, community, and sour candy.

Find Caroline at https://www.carolinecatlin.com On Instagram: @mybodyofwater and Twitter: https://twitter.com/caroline_catlin

In this episode Ethan and Caroline discuss how they relate to dis-ease in their own lives and those around them.  They discuss their relationships with mortality, creativity and connection through the life changes that accompany a major diagnosis.  

Find us at www.ourlifechanges.co and www.extremist.love