In this episode of the Making Headway podcast, hosts Alison and Eryn welcome Toni Hickman, an Emmy award-winning music artist and aneurysm survivor. Toni shares her inspiring journey of overcoming two brain aneurysms and a stroke, and how these experiences shaped her identity and music career. The conversation delves into themes of disability, the societal pressures of perfectionism, and the importance of embracing one's journey. Toni discusses her Emmy-winning song and the creative process behind her lyrics, emphasizing the power of music as a form of therapy and expression. The episode concludes with a reflection on the beauty of diversity and the value of every individual's story.

Keywords

Toni Hickman, disability, music, aneurysm survivor, empowerment, mental health, perfectionism, creativity, resilience, Emmy award

Takeaways

· Toni Hickman is an Emmy award-winning music artist and aneurysm survivor.

· She experienced two brain aneurysms and a stroke at a young age.

· Toni's journey highlights the impact of disability on identity and self-worth.

· The concept of perfection is an illusion that affects many people.

· Embracing life after disability can lead to greater appreciation for oneself and others.

· Toni's music serves as a powerful form of expression and therapy.

· The creative process for Toni's songs often feels channeled from a higher energy.

· Lyrics can convey deep messages about resilience and self-acceptance.

· Everyone has value, regardless of their circumstances or challenges.

· Toni encourages listeners to find beauty in diversity and to learn from every individual.

Sound Bites

"Perfection is the illusion."

"You can learn from anyone."

"Everyone in life has value."

"I will never stop believing in me."

"It just came out through me."

"Beauty's in many different forms."

Chapters

00:00 Introduction to Toni Hickman

01:06 Toni's Journey with Aneurysms

04:16 The Impact of Disability on Identity

09:43 Perfection as an Illusion

13:18 Embracing Life After Disability

17:08 The Emmy-Winning Song and Its Message

20:08 The Creative Process Behind the Music

23:19 The Power of Lyrics and Their Meaning

27:37 Finding Beauty in Diversity

28:35 Connecting with Toni and Her Work

Reach out to

Toni’s music is on all major streaming platforms or at tonihickman.com

Toni Hickman on all the socials: @therealtonihickman

Apple podcasts: Toni Hickman Show

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and resources

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Patreon

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In this episode of the Making Headway Podcast, hosts Alison and Eryn welcome back Nia Renee, who shares her journey through multiple brain surgeries and the impact of chronic illness on her relationships. Nia discusses her transition from being a brain injury survivor to a relationship coach, focusing on helping others navigate the complexities of relationships affected by trauma and chronic illness. The conversation highlights the importance of medical advocacy, personal growth, and the challenges faced by those living with chronic conditions. In this conversation, the speakers delve into the complexities of navigating medical trauma, the importance of self-advocacy, and the emotional toll of job loss. They discuss the significance of journaling as a tool for self-reflection and the necessity of setting boundaries to protect oneself from toxic relationships. The dialogue emphasizes the power of vulnerability and the importance of finding supportive relationships that uplift rather than drain energy.

Keywords

brain injury, recovery, relationship coaching, chronic illness, narcissistic abuse, medical advocacy, emotional healing, personal growth, medical trauma, self-advocacy, job loss, identity, journaling, boundaries, toxic relationships, support systems, chronic illness, empowerment

Takeaways

· Nia has undergone six brain surgeries due to Chiari 1 malformation and idiopathic intercranial hypertension

· Chronic illness can significantly impact personal relationships.

· Medical gaslighting is a common issue for patients with rare conditions.

· Nia's husband plays a crucial role in advocating for her health.

· Nia transitioned to relationship coaching to help others with similar experiences.

· The importance of having proper medical credentials as a coach.

· Nia's journey includes confronting her past relationships and trauma.

· Building a supportive community is vital for recovery.

· Nia emphasizes the need for self-advocacy in healthcare settings.

· Personal growth often comes from confronting difficult experiences. Advocating for oneself is crucial in the face of medical trauma.

· Job loss can significantly impact one's identity and sense of purpose.

· Journaling serves as a powerful tool for self-reflection and understanding triggers.

· Setting boundaries is essential for mental health and well-being.

· Recognizing toxic relationships is key to personal growth and healing.

· Support systems play a vital role in recovery and self-empowerment.

· It's important to prioritize self-care and personal needs.

· Documenting experiences can provide clarity and validation.

· Vulnerability can lead to stronger, more authentic relationships.

· Everyone deserves to feel supported and valued in their relationships.

Sound Bites

"Relationships are a big part of our recovery."

"I started having the strangest symptoms."

"I decided to bet on myself"

"You have to document everything"

"I gaslit myself for so long"

"I would rather spend my life alone"

"It's worth cutting out the shit"

"I married someone that has protected me"

"You deserve to feel that"

"You have to prioritize...

Women experience brain aneurysms at a higher rate than men. Are we alone in wondering what is behind this disparity? NO! This week, we welcome Rosalind Lai MD, a neurosurgeon performing research sponsored by a grant through The Bee Foundation. Dr. Lai and her team are trying to understand the role of the X chromosome in the development of cerebral aneurysms. Understanding this linkage could lead to the discovery of genetic markers for cerebral aneurysms and give insight into the gender differences we see in this condition. The hope would be that eventually we can test for genetic markers and provide treatments that turn down the expression of these genes which would lead to the prevention of brain aneurysms. Join Eryn, Alison, Rosalind and Erin Kreszl of The Bee Foundation (TBF) as we discuss TBF’s fourth pillar—research. Listen to learn more about brain aneurysms and this exciting research project!

Keywords

The Bee Foundation, brain aneurysm, research, gender differences, genetics, prevention, awareness, support, advocacy

Takeaways

· The Bee Foundation supports research, advocacy, awareness, and support for brain aneurysm prevention.

· Brain aneurysms can be asymptomatic until they rupture, making awareness crucial.

· Women are at a higher risk for developing brain aneurysms compared to men.

· This research is focused on understanding the genetic and hormonal factors that contribute to aneurysm risk in women.

· The Bee Foundation has funded over $600,000 in research grants over the past 11 years.

· Genetic research aims to identify specific genes that may increase aneurysm risk.

· Understanding the role of the X chromosome could provide insights into gender differences in aneurysm development.

· Lifestyle factors like smoking and hypertension also play a significant role in aneurysm risk.

· The complexity of aneurysm development makes it a challenging area for research and prevention.

· Community support and engagement are vital for advancing research and awareness efforts.

Sound Bites

"We have four main program areas that we support."

"What is an aneurysm?"

"We want to find these targets."

"Aneurysm is a multi risk factor disease."

Chapters

00:00 Introduction to the Bee Foundation and Its Mission

03:11 Understanding Brain Aneurysms

06:10 Research Focus: Gender Differences in Aneurysms

09:50 The Role of Genetics in Aneurysm Development

19:30 Future Directions in Aneurysm Research

26:38 Engagement and Support from the Community

Reach out to

The Bee Foundation https://www.thebeefoundation.org/

Email: info@thebeefoundation.org

Rosalind, call 716-218-1000

Eryn on IG @eryn_makingheadwaypodcast

Alison on IG @alison_maknigheadwayodcast

MHP on IG @makingheadwaypodcast

Go to our website www.makingheadwaypodcast.com for full show notes and...