Épisodes

  • How a Painful Sun-Related Condition Sparked a Purpose and a Calling | Craig Leppert
    Jan 15 2025

    In this informative interview, Kerri Fitzgerald talks with Craig Leppert, founder of Shadow Jumpers, who lives with a rare painful sun-related condition called erythropoietic protoporphyria (EPP). The genetic condition is marked by an intense reaction to sunlight and other lights, challenging this Los Angeles-based founder to live purposefully while remaining mindful of sun and light exposure. Throughout this we highlight: • How Craig Leppert and his family finally received a diagnosis of erythropoietic protoporphyria and how they handled the news. • Learn about how Craig and his family came to navigate life with EPP. • How Craig founded Shadow Jumpers to provide important resources to the photosensitive condition community. • Be inspired by Craig’s camp for kids with photosensitive conditions that allows them to safely participate in activities like horseback riding, archery, and more. Connect with Craig Leppert and Shadow Jumpers:

    https://www.instagram.com/shadowjumpers_

    https://www.facebook.com/ShadowJumpersINC

    https://www.linkedin.com/company/shadow-jumpers/

    Website: ⁠https://www.shadowjumpers.org/⁠ At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.

    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=3KZm8Tz7lag&t=55s

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    26 min
  • A Hobby Ignites a Passion and Purpose | Krista Webb
    Jan 10 2025

    In this inspiring interview, Kerri Fitzgerald talks with Krista Webb, a wood-burning artist who has not let her Usher syndrome diagnosis define her life and abilities. Krista shares how turning a new hobby into a passion and career opportunity helped her get through the difficult times following her diagnosis. Throughout this we highlight: • How Krista Webb first became acquainted with the wood-burning pen. • How wood burning became a therapeutic outlet for Krista in the wake of her gradual vision loss. • How Krista expanded her social media platform to create educational videos that depict the spectrum that is blindness. • How the white cane has given Krista independence and freedom to navigate the world with vision loss. Connect with Krista Webb: https://www.instagram.com/blindlove.woodburning/

    At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=XB_Lttch99U&t=660s

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    20 min
  • Finding Strength Through Family and Community | Jerome Harper
    Jan 10 2025

    In this important interview, Kerri Fitzgerald sits down with Jerome Harper, a nonprofit CFO who speaks about his family’s experience with Marfan syndrome. The genetic condition has impacted at least 3 generations of Jerome’s family. The health challenges Jerome has faced and the community he has built helped him lean into his vulnerabilities and faith to consistently overcome his circumstances.

    Throughout this we highlight: • How Jerome Harper and his family dealt with the health challenges associated with the genetic condition Marfan syndrome. • How Jerome found community in family and The Marfan Foundation. • How Jerome made a decision to live every day and consistently overcome challenges. • Jerome’s positive message to others who may be facing a struggle. Connect with Jerome Harper: https://www.facebook.com/people/Jerome-Harper/pfbid08ktiUciU5P6hU7b12Ld3i5Wg318SwUgcPbfgjo4Yen8RqSqo5tmHSPVSz97sCLGTl/ At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=4uEKJSNtKqA&t=255s

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    31 min
  • Becoming Vocal and Visible | Bérénice Magistretti
    Jan 10 2025

    In this inspiring interview, Jillian Comstock sits down with Bérénice Magistretti who uses her writing prowess to advocate for and bring awareness to individuals with “invisible” disabilities. Bérénice shares her experience with retinitis pigmentosa and how she learned to not just be vocal about her condition but also purposely visible. Throughout this we highlight: • How Bérénice Magistretti became a vocal advocate for herself and others with disabilities. • How Bérénice came to terms with the need for an assistive aid like a cane and now uses it as a fashion accessory. • How Bérénice relies on senses other than vision to live an exciting and full life. • Bérénice’s recent piece in British Vogue. Connect with Bérénice Magistretti: https://www.instagram.com/berenicemagistretti/ Website: https://www.berenicemagistretti.com/

    At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=jQaNUSLRSVI&t=150s

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    20 min
  • The Caregiver Warrior Provides Support for an Important Community | Susanne White
    Jan 10 2025

    In this important interview, Jillian Comstock sits down with Susanne White, founder of the Caregiver Warrior, a website dedicated to offering resources and support to those who are caring for loved ones dealing with health impacts. Inspired by her own journey as her parents’ caregiver, Susanne is an inspiration to anyone navigating the challenging yet rewarding journey as a caregiver. Throughout this we highlight: • How Susanne White started her caregiving journey that launched a powerful new purpose and career. • How Susanne advocated for the loved ones under her care. • How Susanne learned the importance of taking care of herself while also taking care of others. • Susanne’s message to others who find themselves in a caregiver role. Connect with Susanne White: https://www.instagram.com/caregiverwarrior/ Website: https://www.caregiverwarrior.com At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=sFIgvNr6Wks&t=1500s

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    29 min
  • Educating Others on Adaptive Technology | Sam Seavey
    Jan 10 2025

    In this informative interview, Jillian Comstock sits down with Sam Seavey, creator of The Blind Life, the largest online resource dedicated to assistive technology. While grappling with his own vision impairment journey, Sam has created a digital community that connects those with vision loss with important technology and adaptive equipment and software. Throughout this we highlight: • How Sam Seavey built the largest online resource for assistive and adaptive technology. • How a school for the blind changed the trajectory of Sam’s experience with vision loss. • Sam's inspiring message for people and families navigating a new health diagnosis. • Sam’s decision to fill an important void by launching a community that educates and informs people on the capabilities of adaptive technology. Connect with Sam Seavey: https://www.tiktok.com/@theblindlife

    https://www.instagram.com/theblindlifesam

    https://www.youtube.com/c/theblindlife https://x.com/TheBlindLifesam Website: https://theblindlife.net/ At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=QkNKzDzHDS4&t=199s

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    20 min
  • Using Social Media to Advocate for Others | Stephanie Renberg
    Jan 10 2025

    In this thoughtful interview, Jillian Comstock sits down with Stephanie Renberg, a digital content creator who is using her voice and platform to educate and inform others about blindness and other disabilities. Stephanie turned her passion for theater into a social media movement with her engaging and informative content. Throughout this we highlight: • How Stephanie Renberg gained inspiration from others on BlindTok to launch her own social media presence. • How Stephanie advocated for herself and her needs growing up with a progressive vision condition. • Hear Stephanie challenge the stigmas associated with disabilities. • Stephanie's resilience and advocacy efforts. Connect with Stephanie Renberg: https://www.instagram.com/stephanierenberg/

    https://www.tiktok.com/@stephanierenberg

    https://www.youtube.com/channel/UCDsTWxBBqLAKURNod4kVG-Q

    At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360: https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=KqGY7UE6rC0&t=1735s

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    33 min
  • Reaching New Heights With Running | Eavan O'Neill
    Jan 10 2025

    In this impactful interview, Jillian Comstock sits down with Eavan O’Neill, a marathon runner who was diagnosed with a form of vision impairment just months before the COVID-19 pandemic rocked the world. She shares how her diagnosis and the pandemic resulted in the hardest year of her life, but running eventually helped her heal and become an inspiration for so many with vision impairment. Throughout this we highlight: • How Eavan O’Neill used running as a coping mechanism for her Stargardt’s disease diagnosis. • How Eavan navigated the emotional toll of a recent health diagnosis at the same time the COVID-19 pandemic changed the world. • The stereotypes Eavan had to overcome in navigating her journey with progressive blindness. • Eavan’s support group, Brightside, which is helping others live full, rich, and beautiful lives. Connect with Eavan O’Neill: https://www.instagram.com/eavanoneilll/ At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.


    Support My Hero 360:

    https://www.instagram.com/myhero.360/

    https://www.tiktok.com/@myhero.360

    https://www.myhero360-links.com


    Watch this on YouTube: https://www.youtube.com/watch?v=sG8Zw78ERZk

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    27 min