In this episode, we discuss supportive care, which encompasses the management of both treatment side effects and complications of multiple myeloma rather than the disease itself. We’ll hear from a patient living with myeloma and a social worker working in oncology as they discuss their experiences with supportive care and what you can do to improve your quality of life.

Topics of discussion:

(4:54) Supportive care and quality of life

(7:26) Role of a social worker

(9:06) Fatigue

(13:31) Pain

(19:44) Peripheral neuropathy

(21:56) Mental health distress

(27:42) Gastrointestinal symptoms

(31:08) How to communicate with your health care team

This episode is supported by AbbVie, Amgen, CURE, Genentech, GSK, Johnson & Johnson, Karyopharm, Legend Biotech, Pfizer, Regeneron, and Sanofi.

To learn more about supportive care, visit www.themmrf.org/support.

To learn more about multiple myeloma, visit www.themmrf.org.

If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

In this episode, you’ll learn what being a cancer survivor means, why the concept of survivorship is important to patients living with myeloma, how to be an empowered advocate for your care, and what to expect day-to-day in your myeloma journey.

MMRF patient navigators Erin Mensching, Grace Allison, and Brittany Hartmann join the podcast to provide up-to-date information on myeloma management, talk about resources that are available to myeloma patients, and offer suggestions on connecting with other myeloma patients, caregivers, and experts.

(0:00) Definition of survivorship

(2:04) Learning the diagnosis

(10:24) Shared decision-making

(39:28) Empowerment through knowledge

This episode is supported by AbbVie, Adaptive, BMS, CURE, Genentech, Kite/Arcellx, Pfizer, Regeneron, and Sanofi.

To learn more about newly diagnosed multiple myeloma, download the Survivorship Fast Facts in Myeloma here.

To learn more about multiple myeloma, visit www.themmrf.org.

If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

In this episode of Myeloma Matters, you’ll learn about autologous stem cell transplantation and why it is considered the standard of care for eligible newly diagnosed patients. You’ll hear from four patients who have undergone the procedure—sometimes even twice.

Topics of discussion:

(22:45) Stem cell transplantation as a treatment option

(28:30) What type of support is needed before and after a transplant?

(40:05) Potential long-term complications from a transplant

(43:40) Fertility issues when diagnosed at a young age

(45:24) Potential concerns when considering a transplant

(50:15) Concerns about the risk of secondary cancers from maintenance therapy

(57:57) Advice to those considering a transplant

(1:07:04) Can a transplant be saved for relapse?

This episode is supported by Adaptive, Amgen, Bristol Myers Squibb, GSK, and Janssen.

To learn more about autologous stem cell transplantation, download the Multiple Myeloma: Autologous Stem Cell Transplantation information sheet here.

To learn more about multiple myeloma, visit www.themmrf.org.

Stay up to date on the MMRF’s FREE programs and resources at the MMRF Education Hub.

If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.