Épisodes

  • Episode Seven - The Patient Perspective

    Episode Seven - The Patient Perspective
    Jun 29 2022
    Neuromyelitis optica spectrum disorder (NMOSD), can impact every patient differently. In this episode, Debbie invites two patients – Lynda and Erica – to the couch to talk about their own experiences with NMOSD and how they’ve coped with this rare condition.
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    38 min
  • Episode Six - Taking back control

    Episode Six - Taking back control
    May 31 2022
    Experiencing a diagnosis of NMOSD can be a mix of relief but also concern. Learning how to adjust and manage your health and wellness can take some planning. Our podcast host Debbie Leticq is joined on the NMO couch by neuro-immunology nurse specialist and research fellow, Dr Therese Burke to talk about taking back control.
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    34 min
  • Episode Five - Navigating relationships

    Episode Five - Navigating relationships
    May 24 2022
    Being diagnosed with a complex condition can be a difficult time for both the individual, but also to friends and family. Debbie and Dr Sally Shaw discuss some of those challenges in this episode, and share some insights and advice about how to work your way through the ups and downs.
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    36 min
  • Episode Four - Living well with NMOSD

    Episode Four - Living well with NMOSD
    May 19 2022
    Some people with NMOSD recover well after relapse whereas others can live with lingering health issues including vision impairment, mobility issues, pain and difficulty with bowel and bladder issues. Whilst everyone is different, knowing where to go and what to do to get support is important. Nurse specialist, Dr Therese Burke talks about strategies to living well and connecting to support with our host Debbie.
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    17 min
  • Episode Three - Managing uncertainty

    Episode Three - Managing uncertainty
    May 9 2022
    Learning to live with a chronic, rare auto-immune condition can be overwhelming for some. The unpredictable nature of NMOSD can mean that many who are diagnosed live with uncertainty. Host Debbie Leticq talks with psychologist Dr Sally Shaw about managing some of that uncertainty with confidence.
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    36 min
  • Episode Two - Recognising a relapse

    Episode Two - Recognising a relapse
    May 2 2022
    Relapses are a central feature of neuro myelitis optic spectrum disorder, but not everyone with NMOSD will experience them in the same way. Our host, Debbie Leticq talks to neurologist Dr Lesley-Ann Hall to help understand the nature of relapse and recovery in NMOSD.
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    24 min
  • Episode One - Unpacking NMOSD?

    Episode One - Unpacking NMOSD?
    May 2 2022
    Neuromyelitis optica spectrum disorder (NMOSD) is rare, but knowledge about this unique condition has come a long way since our host Debbie Leticq was first diagnosed. In this episode, Debbie speaks to neurologist Dr Lesley-Ann Hall about her own journey to diagnosis, living with an ‘invisible illness’ and why it’s important to get an accurate diagnosis as soon as possible.
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    32 min