Since many individuals with a rare disease can face years of delayed diagnosis and unnecessary testing, in the first episode of ‘Rare and There’, CEO of Medics4RareDiseases, Dr. Lucy McKay, covers why it is important for all medical professionals to learn about the basics of rare diseases to help further our understanding of the needs of the rare disease community, particularly regarding the impact on individuals and their relatives.
This podcast was initiated, organised and funded by Amicus Therapeutics and is intended for healthcare professionals in UK. The views expressed reflect the experience and opinions of the speaker. Individual experiences may vary.
NP-NN-UKI-00171024 (Date of preparation: October 2024)
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Nov 19 202434 min