Sarcoma Stories

Auteur(s): Sarcoma Foundation of America
  • Résumé

  • We're excited to announce, "Sarcoma Stories" a new podcast from SFA.

    Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.

    Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.

    We will also have a post episode discussion on our new facebook group. Join Now: https://www.facebook.com/groups/512452631597704

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Épisodes
  • Sarcoma Stories - Mike Caccioppo
    Feb 19 2025

    Mike Caccioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community and how advocacy for both has become a part of his life. He also talks about parenting while navigating a sarcoma diagnosis and how he maintains an optimistic mindset through all of the challenges he's faced.

    Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704/

    Mike's Instagram: https://www.instagram.com/mikec829/

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    47 min
  • Sarcoma Stories - Maria Peña
    Feb 5 2025

    On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025.

    Content Warning: Death from sarcoma, death of a child.

    Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/

    Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704

    Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774

    RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entry

    All RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/

    Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey

    IRB Protocol ID 0686

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    1 h et 2 min
  • Sarcoma Stories - The Brenneman Family
    Jan 22 2025

    In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy.

    content warning: death from sarcoma, death of a parent, death of a spouse

    AJ's Blog: https://www.200-miles-closer-to-dad.com/

    David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/

    https://imermanangels.org

    Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

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    1 h

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