The Grace, Grief and Grit Podcast

Auteur(s): Dee Daniels Media Podcast Network
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  • Résumé

  • Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
    Copyright 2023 All rights reserved.
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Livres audio pour enfants
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Épisodes
  • Finding Strength in Vulnerability: A Father's Journey Through Grief

    Finding Strength in Vulnerability: A Father's Journey Through Grief
    Feb 6 2025
    Welcome to the Grace, Grief and Grit Podcast Season 2 Finale. Join host Dee Daniels as she sits down for an emotional and inspiring conversation with Joe Davis, a father who has bravely shared his journey of losing a child. --- In this reflective episode, Joe opens up about the progress he's made since his last appearance, his struggles with vulnerability, dealing with triggers and grief, and the complexities of maintaining his faith. Joe also discusses the importance of being a vulnerable sounding board for others, the difficult balance of recalling certain memories as time goes on, and the hopeful advancements in EB research. --- This episode honors the strength and resilience it takes to navigate life's most profound losses while still finding moments of connection and joy.

    Thank you for listening! Please rate and review this podcast - and share the episode with others to help spread awareness of the continuous work to find a cure for EB.

    Learn more about EB and the voices in this episode:

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
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    1 h et 3 min
  • A Night of Stars and Strength: The LA "Rock4EB" Experience

    A Night of Stars and Strength: The LA "Rock4EB" Experience
    Jan 30 2025

    In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event.

    ---

    They discuss the significance of the event, designed to raise awareness and funds for Epidermolysis Bullosa (EB), and their personal experiences meeting notable celebrities like Brad Pitt and Courteney Cox.

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    The Davises share stories of kindness and generosity from the attendees, the emotional connections made, and the impressive sum of over a million dollars raised for EB research. They reflect on the importance of unity among EB organizations and how events like these inspire further growth and collaboration.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Learn more about EBMRF

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    Voir plus Voir moins
    38 min
  • From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse

    From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse
    Jan 9 2025

    Welcome to the 'Grace, Grief and Grit' Podcast!

    In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Dennis shares his journey of writing inclusive children's books, focusing especially on his book 'Everyone Belongs' which discusses Epidermolysis Bullosa (EB).

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    The conversation delves into Dennis's inspiration, the impact of his work, and the importance of acceptance and awareness in education. Dennis's background in special education and his personal experiences shape a compelling narrative around inclusivity and understanding. The episode also highlights advancements in EB treatments and the ongoing efforts to foster a supportive community for individuals with EB.

    Thank you for listening!

    Learn more about EB and the voices in this episode:

    Find Dennis on Instagram

    Tap HERE to see all of Deniss Vanasse's books

    Tap HERE to become a HALLIE HERO

    Tap HERE to connect with Hallie's Story

    EB in depth

    Meet the family behind Heroes for Hallie Grace

    Donate and Join the Fight

    Proudly hosted and produced by Dee Daniels Media
    Voir plus Voir moins
    38 min

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