• When Life Gives You Parkinson's

  • Auteur(s): Curiouscast
  • Podcast

When Life Gives You Parkinson's

Auteur(s): Curiouscast
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  • Résumé

  • Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their own stories revealing the challenges and growth offered by the Parkinson’s journey. Larry is a seasoned broadcaster and the podcast is co-hosted by then-radio personality Niki Reitmayer until 2020 when Larry’s wife Rebecca takes on the role. Special thank you to our partners. Presenting partner is Parkinson Canada, content and promotional partner Spotlight YOPD, and The Michael J. Fox Foundation for Parkinson’s Research Parkinson’s IQ + You, PD Avengers, World Parkinson Congress #WPC2023 in Barcelona, Spain.
    2022 Corus Radio
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Hygiene & Healthy Living Psychologie Sciences sociales Troubles et maladies
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Épisodes
  • PD Avengers Weekly Chat - Balancing Life and PD

    PD Avengers Weekly Chat - Balancing Life and PD
    Feb 5 2025
    The PD Avengers discuss the challenges of balancing life with Parkinson's disease, emphasizing the impact of Deep Brain Stimulation (DBS) on daily routines. Both Tim Hague and Larry Gifford highlighted the necessity of daily naps and improved sleep post-DBS, though daytime sleepiness persisted. They shared personal strategies like improv for maintaining positivity and energy. Traveling with DBS was noted as challenging, with issues like being patted down at airports. They promoted the PD Avengers community, encouraging sign-ups to amplify their voice in ending Parkinson's. The conversation also touched on practical tips like using the sunflower card for hidden disabilities at airports. www.pdavengers.com https://sparkthenight.org https://hdsunflower.com/ ASK A QUESTION: https:///www.speakpipe.com/pdavengers Learn more about your ad choices. Visit megaphone.fm/adchoices
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    13 min
  • PD Avengers: What have you learned about yourself since your diagnosis?

    PD Avengers: What have you learned about yourself since your diagnosis?
    Jan 28 2025
    PD Avengers co-founders Larry Gifford, Soania Mathur, and Tim Hague Sr. discussed various topics related to Parkinson's disease, including recent news and advancements in Deep Brain Stimulation therapy. They also shared personal experiences and lessons learned since being diagnosed with Parkinson's, emphasizing the importance of self-advocacy, mindfulness, and finding positivity in the face of adversity. The conversation ended with a focus on what they've learned about themselves since their diagnosis. Ask a question: www.speakpipe.com/pdavengers Learn more about your ad choices. Visit megaphone.fm/adchoices
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    9 min
  • PD Avengers: Three things to focus on in the new year

    PD Avengers: Three things to focus on in the new year
    Jan 24 2025
    In the PD Avengers Weekly Chat titled "3 Things to Make 2025 Great!", co-founders Larry Gifford, Soania Mathur, and Tim Hague discuss three key actions to enhance the well-being of individuals with Parkinson's disease in the coming year: Engage in Regular Exercise: Tim emphasizes the importance of consistent physical activity, citing research that shows 30 minutes of intense exercise, five days a week, can slow the progression of Parkinson's. He shares his personal routine at U-Turn Parkinson's, which includes activities like Tai Chi, dance, and functional fitness classes. Build a Supportive Community: Larry highlights the value of connecting with others to combat isolation. Engaging with people facing similar challenges can significantly improve one's quality of life. He notes that having a reliable support network, like his co-founders, has been beneficial for him. Participate in Research Initiatives: Soania encourages involvement in research, stressing that patient participation is crucial for developing better treatments and finding a cure. Opportunities range from enrolling in clinical studies to fundraising or completing online questionnaires. She mentions the Fox Insight study as an example of a valuable research project that involves filling out information online. Additionally, they discuss the World Parkinson Congress's year-long fundraiser aimed at raising $25,000 for Young Onset Parkinson's travel grants for the upcoming congress in Phoenix in May 2026. They also congratulate Michael J. Fox on receiving the Presidential Medal of Freedom and acknowledge his continued advocacy for ending Parkinson's disease. For more information about the PD Avengers and their initiatives, you can visit their official website: PD Avengers To learn more about the World Parkinson Congress and their fundraising efforts, visit: www.wpc2026.org For more information about the Fox Insight study, visit: www.foxinsight.com Learn more about your ad choices. Visit megaphone.fm/adchoices
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    7 min

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