Chronic Illness Memoir

Here, in their own words, are seven children who confronted life-threatening illnesses such as cancer, sickle cell anemia, disability, and AIDS. Ranging in age from 7 to 17, these children from different backgrounds and with different personalities, share uncommon courage, a vibrant spirit, and piercing candor and eloquence about how to seize life, to glorify it, and be grateful for its gifts. Through poems written at Paul Newman's Hole in the Wall Gang Camp and conversations with loved ones, they reveal their attitudes towards life, illness, remission, religion, family, and friends.

John Lynch was a promising athlete, but at age 11 was struck by a crippling illness. He was diagnosed with juvenile arthritis (JA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. John continued to seek new treatments, but not until age 53 was he given the “miracle drug” that enabled him to sustain a 30-year legal practice. During that time, he dedicated his life to helping others who suffered from JA and became a much-honored advocate for easing their distress.

Transformative, enlightening and inspiring - a compelling and candid story of life with constant pain. Irish broadcaster and producer Andrea Hayes is well known to the Irish public for her positive, friendly and down-to-earth persona on television and radio. Hidden behind her smile, though, is Andrea's battle with constant chronic pain. After over 20 years of unanswered questions, misdiagnosis, failed procedures and despair, she was diagnosed with a rare neurological disorder, Chiari Malformation 1.

Allie Cashel has suffered from chronic Lyme disease for 16 years - but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment.