Dementia Memoir

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

At first, Simon’s beloved father, Ted, suffered sudden bad moods and forgetfulness. Then the diagnosis: Alzheimer’s. Ted was disappearing from the family, but Simon wanted to hold on to him. While music could bring him back temporarily - the video of the two of them singing along to Ted’s favorite song was a hit around the world - Ted could no longer tell his story. This is that story.

Mama Is Still Here! is a true story of an educated and accomplished African American woman who was raised in the state of Mississippi between the 1940s and 1960s. Daisy: a wife, mother, and everyone's favorite sister, aunt, and friend is admired for her swagger and confidence. But she finds her life spiraling out of control because of impaired memory lapses due to Alzheimer's disease. The devastating diagnosis crushed Daisy and her husband's world, and the world of their adult children.

What if the dreaded world of Alzheimer's was also a world of emotional discovery? Eugenia Zukerman's poetry and simple prose, both heartbreaking and ultimately inspirational, ushers the listener into her world as she unflinchingly examines familial loyalties, moments from her past and present, and the need to face an uncertain future due to the diagnosis of a condition that she truly hopes "will remain unnamed."