Dementia Memoir

On April 9th, 2019, Jonathan got the dreaded call: his father Thomas had been rushed to the ER. He’d known for a while that Thomas’s health was in decline, but at this pivotal moment, he had no choice but to step into the role of caretaker—a role Thomas himself was never able to grasp. In The Mind is Burning, Jonathan recounts the stranger-than-fiction true story of the Hirsch family.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature.

The Memory Chalet is a memoir unlike any you have ever experienced before. Each essay charts some experience or remembrance of the past through the sieve of Tony Judt's prodigious mind.

The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones.

In 2003, England won the Rugby World Cup. Steve Thompson was there, in England's front row, at the heart of the match and at the heart of the scrum—one of sport's most destructive, repetitive impacts. But the triumphs came at a cost. When rugby union turned professional, Steve was plunged into a game where raw power meant everything. Today, he remembers nothing about playing in that final. In his words, watching the tape back is like watching a ghost.

While fighting an aggressive brain tumor, Deirdre must care for her mother with advanced Alzheimer’s, raise her teenage daughter, and help her husband chase a new dream - opening a barbecue restaurant. Her greatest defense is her sense of humor in this tender memoir chronicling life struggles that are often tragic - but can still be very funny. Grab a tissue and take a ride as one batty broad battles her way through the tragicomic trials of her most perilous adventure yet - brain cancer.

In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.

In Get in the Boat, Darlene Fuchs shares the powerful and poignant story of her father Richard's experience as a caregiver to his wife Gail during her decline into dementia. This memoir, based on the journals of Richard Sonnichsen, is a heart-wrenching yet inspiring exploration of the enduring power of love, faith, and resilience in the face of life's most difficult challenges.

Happily married and running a successful business, Peter Berry's life changed when, at the age of 50, he was given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'.

My Disappearing Mother: A Memoir of Magic and Loss is far more than a memoir on the devastation that comes with dementia, a cognitive impairment that affects fifty-five million people worldwide. Finnamore beautifully chronicles her mother's rich and varied life journey, from her birth in Puerto Rico during the height of the Depression to ferrying to the United States, in hopes of a better life. On U.S. soil, her mother, Bunny, started working as a performer for enlisted men, then became a secretary, and eventually a professional clairvoyant.

At just past 70, Alex Witchel’s smart, adoring, ultra-capable mother began to exhibit undeniable signs of dementia. Witchel reacted as she’d been raised: If something was broken, she would fix it. But as medical reality undid that hope, she retreated to the kitchen, trying to reclaim the mother who was disappearing in plain sight, by cooking the comforting foods that were her mother’s signature. Reproducing the perfect meat loaf was no panacea, but it helped a grieving daughter come to terms with her predicament, the growing phenomenon of "ambiguous loss" - loss of a beloved one who lives on.

This is the story of Carolyn’s mother, her dementia, and how they navigated her journey together. Your loved one may not force feed stuffed animals vanilla pudding or burn their neighbor’s mail like Fay did, but if you’re living through the sad realities of your loved one’s slow and tortuous farewell, this book will help you find solace as you deal with it realistically and with a heart at peace.

Leaving London to return home to rural South Wales, Robyn finds that it's her old life - same teddy bears resting on her pillow, their bodies tucked under the duvet; same view of the garages behind which she'd had her first cigarette and first kiss - but so much has changed. Her dad, the proud, charmingly intelligent self-made man who made people laugh, was in the grip of early onset Alzheimer's. His brilliant mind, which saw him building power stations and literally bringing light into the lives of others, had succumbed to darkness.

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

I Will Never Forget is the powerful true story of the author Elaine’s talented mother's extraordinary journey through Dementia. Through superb stories from Elaine’s childhood, including her controversial name, tales of smokin’ dragons, and the feisty teenage years, Betty Ward’s wonderful character is revealed. Over time, as their relationship evolves and a new paradigm is formed, her mother begins to exhibit goofy behaviors, uncharacteristic verbal assaults, and bizarre thinking.

In 1992, Franziska Thomas had her first seizure and her whole world was turned upside down - literally. In Fits and Starts, Franziska gives a compelling personal description of living with epilepsy, an illness shrouded in secrecy and antiquated myths. Laden with self-deprecating humor, she describes her own coming of age - as an epileptic, a teacher, and ultimately, a mother.

Mama Is Still Here! is a true story of an educated and accomplished African American woman who was raised in the state of Mississippi between the 1940s and 1960s. Daisy: a wife, mother, and everyone's favorite sister, aunt, and friend is admired for her swagger and confidence. But she finds her life spiraling out of control because of impaired memory lapses due to Alzheimer's disease. The devastating diagnosis crushed Daisy and her husband's world, and the world of their adult children.

What if the dreaded world of Alzheimer's was also a world of emotional discovery? Eugenia Zukerman's poetry and simple prose, both heartbreaking and ultimately inspirational, ushers the listener into her world as she unflinchingly examines familial loyalties, moments from her past and present, and the need to face an uncertain future due to the diagnosis of a condition that she truly hopes "will remain unnamed."