Disability Activists

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

Quentin Kenihan is living proof that superheroes don't need capes, just the right attitude. When he was a kid, Quentin loved Superman. Ironic, really. Quentin didn't need kryptonite to reveal his weakness - born with a rare bone disorder, osteogenesis imperfecta, his bones broke all on their own. When Quentin was seven, Mike Willesee made a documentary about him. Australians fell in love with his wit and never-say-die attitude. Over the years he grew up before our eyes. But there was a dark side to his life. The true story was never told...until now.

In the spring of 1974, as the last American troops were being pulled out of Vietnam, Ron Kovic and a small group of other severely injured veterans in a California VA hospital launched the American Veterans Movement. In a phenomenal feat of political organizing, Kovic corralled his fellow AVM members into staging a sit-in, and then a hunger strike, in the Los Angeles office of Senator Alan Cranston, demanding better treatment of injured and disabled veterans.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

Frank Rivera is an advocate for not only Sarcoidosis, but also for the rare disease and chronic pain community. This audiobook is about how to rise above adversity and the strength of one person. One person can make a difference if you work hard. Frank has dealt with adversity as a child with leukemia. His mother having health issues herself taught him strength and love. He fought through tough times during his childhood to only find out as an adult, after misdiagnosis, he has a rare disease that has no cure.

From a young age, Stephen Hawking had a strong sense of wonder and was full of questions about the world around him and the stars above. He would spend his whole life trying to figure out how the universe worked, including discovering truths about black holes and energy. And when he was diagnosed with a rare disease called ALS that destroys the nerve cells in the body, he would find his own mental energy to carry on with his studies even after his limbs and vocal chords stopped working. He became one of history's most influential scientists.

Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people - but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age 13 to provide for his family, and, eventually, became a cyclist. He rode an astonishing 400 miles across Ghana in 2001, spreading his powerful message: Disability is not inability. Today, Emmanuel continues to work on behalf of the disabled.