Disability Biography

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

Dive headfirst into the urban symphony of "Smelling the Taste of Sound", a riveting memoir of a newly diagnosed, neurodivergent trainee lawyer. Her sensory issues are compounded by the sirens that punctuate the daily grind of a tough, inner-city law firm. Amidst encounters with eccentric characters and surreal personalities, our protagonist navigates the chaos and unorthodox office dynamics with comical observations and resilience.

Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle “failed” his first test—a hearing test—to the joy and excitement of his parents.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

"Je vis avec l'autisme", écrit Josef Schovanec, soulignant ainsi ce qu'il considère plus comme une qualité que comme un handicap. Ce voyageur passionné des civilisations anciennes maîtrise une dizaine de langues, est diplômé de Sciences Po et possède un doctorat en philosophie. Il récuse pourtant les attributs qu'on lui prête - ceux d'un autiste "génial" aux capacités intellectuelles extraordinaires - pour évoquer plutôt, avec beaucoup d'humour et de sensibilité, ces "petits" problèmes qui font le quotidien d'un autiste Asperger.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.