Disability Biography

What were you doing when you were 22? Where were you in the world? What did you want to do with your life? Ben Parkinson was a six-foot-four-inch paratrooper. He was in Afghanistan fighting for his country. He wanted to always be a soldier, to be a father and to get home in one piece. But we don't always get what we want. So the question is: how do we react when that happens? Easy: you find something new to fight for.

Parenting can be a struggle, especially parenting a disabled child. In this flawlessly crafted memoir, Kramar describes championing her son, diagnosed with Sotos syndrome, through his short life. She examines the experience of loving and losing a child and reminds us that there is a way forward through the grief. Kramar’s memoir offers guidance, wisdom, and inspiration - an amazing story of redemption and hope.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

At 35, the same age as his mother when she had her accident, Mitch began experiencing symptoms of primary progressive multiple sclerosis, a particularly disabling form of MS, and his physical challenges grew to resemble his mother’s. In the ensuing years, he muddled through the ethical swampland of clinical trials, navigated the minefield of experimental treatments, and became a popular blogger and disability advocate. Equal parts entertaining and inspiring, Enjoying the Ride tells an extraordinary mother and son story.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

Blind from birth, Graeme Innes was blessed with a family who refused to view his blindness as a handicap, instilling in him a belief in his own abilities; blessed with a determination to persevere. After a long and successful career as a lawyer, company director and Human Rights Commissioner, Graeme has written his story. Finding a Way shares his memories of love and support, challenges, failures and overcoming the discrimination so many people with disabilities face.

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

Don entered the workforce as a young man barely out of high school, full of enthusiasm and idealism. He soon received a reality check about corporate America. Raised in the middle class, he believed in the value system of an honest day's work for an honest wage. That by doing what was "right" and working hard, he would succeed. The Company Store, however, had other plans for him and his coworkers - the American working class.

A gorgeously crafted memoir about resilience, family, and forging your own way, by a woman born without legs. At the age of three, Eileen Cronin first realized that only she did not have legs. Her boisterous Catholic family accepted her situation as "God's will", treating her no differently than her 10 siblings, as she "squiddled" through their 1960s Cincinnati home. But when starting school, even wearing prosthetics, Cronin had to brave bullying and embarrassing questions.

In Laughing and Crying Alone, we are offered a compelling account of the struggles associated with bipolar disorder. Alternately heartbreaking and uplifting, we follow Lisa through the laughter and the tears. Exploring Lisa's feelings of isolation, Laughing and Crying Alone provides compassion and validation to those with mental illness while shedding a much-needed light on mental health. And through it all, we see a wife and mother come to terms with the uncertainties of living with bipolar disorder and reemerge to embrace the new normal with confidence and ease.

Finding Re2pite is a diary that uncovers how suffering can impact the heart of the fitness-minded. Within this audiobook, you'll learn how suffering breaks us, shapes us, and sends us. Whether it's providing wheelchairs in third world countries or helping parents with local respite care, any exposure to those impacted by special needs will help you realize what is significant and what is not.

Joe Secrist was born with a rare condition called coloboma, which means that part of the one or more structures inside an unborn baby’s eye does not fully develop during pregnancy. A coloboma occurs in about one in 10,000 births. He was not diagnosed until his early childhood and was considered the clumsy boy who crashed his bike. This is Joe’s story and his account of life during his years of abuse and neglect. Once sent away, his abuse continued at the Indiana School for the Blind. Joe has kept his silence until now.

Desperate to alleviate her son's constant rages and their crushing toll on the family, Donnie Kanter Winokur comes up with an innovative, untested, four-pawed solution: a golden retriever service dog named Chancer. Chancer is specially trained to give Iyal a unique love he desperately needs. But in this true-life tale infused with moments of despair, tenderness, and humor, Chancer turns out to be what the entire family has needed to stay - and grow - together.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

British TV reporter Ron Onions was based in New York at a momentous period of US history, covering the moon landings and the assassination of Martin Luther King. Yet at the same time as his high-flying career was taking this transatlantic turn, he was facing tough choices at home: his younger daughter, four-year-old Lulu had been born without a thyroid gland, and her resulting severely disruptive symptoms posed a huge challenge for her caring family.

Nadeem's journey is a story told by a mother about her son—it’s not just about a mothers love, it also shows his compassion towards her, his siblings, family and friends. It shows us how he never let his illness define who he was even when the doctors were curt and less kind with their delivery of information. This book tells us the story about a fight to survive, a story about a mother’s love for a child and a story about how a community comes together to support each other.