Disability Biography

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.

Is it possible to find strength in struggle and purpose in pain? Ask Dr. April Jones, a young mother who battled her two-year-old son’s cancer while getting her doctorate. Her struggle to make the heart-wrenching decisions with her family led to a discovery of God, courage, and a happiness within that helped her transform scary misfortune into a joy-filled life. In No Mess, No Message, Dr. Jones shares her real, raw journey and reveals insight into how powerful thinking and strong faith can lead to inner healing.

I don't know whether this is the story of Jeff the autistic individual, Jeff the man of God, or Jeff the medical enigma; but I do know it is the story of Jeff, my son. Jeff was so autistic, and yet not autistic at all if you used the textbook definition. He had huge sensory integration issues and appeared to be living inside of himself, but he cared so much for God and other people that their needs always came above his own. He had severe speech issues, only spoke one-word answers, but wrote beautiful papers and prayers when given the Canon communicator.

This book is about one big rollercoaster. It's about a girl who has CP (cerebral palsy) and the challenges she has faced throughout her life. A girl who is lucky to be blessed with people who stood beside her all the way. A girl who tries to do it all and doesn't let her CP get in the way of life. She just goes with it!

Dharana nos cuenta en este alentador relato su inquebrantable fuerza interior frente a la experiencia de la enfermedad y cómo cultivar la energía del amor y la comprensión le han liberado del miedo. Le han hecho seguir siempre adelante siendo este su lema, por más difícil que la vida se lo haya puesto.

My neurologist stunned me when she said, “You have multiple sclerosis, and looking at your MRI, you are a walking time bomb. You may not have symptoms today, but it’s just a matter of time.” As the MS tightened its grip on my body, I plunged deep into a myriad of strange feelings—denial and depression for over a year.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

2020 was a hard year for everyone. In this journal, learn how one woman experienced the pandemic while also having to deal with the effects of having bipolar disorder. From the book: "Truth is best expressed as silence. Words are our creations. They come and go, live and die. They are incapable of expressing what is real. This has been a journal of a false identity assuming itself to be real. From this new vantage point, I see how I am creating this story. Today I start a new chapter. Or maybe it is just a page. Even if I could just cobble together a sentence. Make it meaningful!"

Lorenzo Amurri non nasce come scrittore, lo diventa in seguito a un tragico incidente di sci che, a soli 26 anni, frantuma la strada artistica sulla quale viaggiava sin da giovanissimo: chitarrista rock, produttore musicale. Un ragazzo dinamico e trasgressivo senza mezze misure. Dall'incidente e dalla sua nuova condizione segnata dalla tetraplegia e dall'impossibilità di stringere ancora tra le braccia la sua chitarra, Lorenzo rinasce. Nel 2008 decide di affidare al suo blog Tracce di ruote "riflessioni, denunce e cronaca della sua seconda vita".

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.

See? is an inspirational autobiography that describes how God's grace and the firm, loving support from family, friends, neighbors, an exceptional teacher, and caring supervisors guided the author through life's challenges. It also debunks common myths of blindness and discusses adaptive equipment used by the author on her journey.

This book is based on real-life events and is a raw and authentic account of a true fight for life and justice—a memoir of a mother’s love for her daughter, Rachel, who is diagnosed with severe cerebral palsy, a condition which makes her incapable of voluntary movement or speech. It tells of hopes and fears, and the true meaning of what it’s like to be the mother of a daughter with severe cerebral palsy. It portrays Rachel’s passion for life and her mischievous sense of fun.