Disability Biography

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

According to the National Eye Institute by 2020 it is estimated that 5.5 million people of all ages will be blind or have low vision. Low vision is impairment that cannot be corrected by standard eyeglasses, contact lenses, medication, or surgery. That is one out of 28 and that is shocking. The purpose of this book is to let listeners know that loss of eyesight is not a death sentence. Twelve people have shared their stories detailing how they met the enemy in their own lives and how they cope on a day-to-day basis.

Born with cerebral palsy, Geri Jewell inspired a generation of young people when she became the first person with a disability to appear in a recurring role on prime-time television, with her groundbreaking character, Cousin Geri, on the NBC sitcom The Facts of Life. The book's title - I’m Walking As Straight As I Can - has a double meaning, referring to both Jewell's sexuality and her extraordinary struggle growing up with cerebral palsy.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

In Voice, Adam Pottle explores the crucial role deafness has played in the growth of his imagination and in doing so presents a unique perspective on a writer's development. Born deaf in both ears, Pottle recounts what it was like growing up in a world of muted sound, and how his deafness has influenced virtually everything about his writing, from his use of language to character and plot choices.

At 30 years old Bryan Bishop’s life was right on track: as the sidekick on The Adam Carolla Show, his career was taking off and, newly engaged, his personal life was soaring to new heights. Then he was diagnosed with an inoperable brain tumor. Suddenly Bryan’s promising future was looking at a troubling schedule of radiation and chemotherapy. But having found refuge in comedy, "Bald Bryan" recounts his alternately heartbreaking and hysterical experience of cancer treatment and recovery.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

A journey from darkness to acceptance is a raw and compelling memoir chronicling one woman's harrowing personal struggle with mental illness. When a severe psychotic break abruptly derails Elisa's stable life as a wife and mother, she finds herself plunged into an unpredictable world ruled by the terrifying whims of her mind. This powerful personal account traces Elisa's odyssey through the fragmented mental health system, oscillating from psychiatric holds to outpatient programs and back again as doctors struggle to control her volatile mood cycles.

I never planned to write about my life with cerebral palsy (CP), but after years of absurd, frustrating, and hilarious experiences, I had to share them. This book is part memoir, part guide to navigating an able-bodied world when your body has its own agenda. From my mom almost being mistaken for a prostitute to a first date disaster in a movie theater, my life is full of bizarre encounters. Doctors talk over me, cops have been afraid of me, and strangers treat me like a sideshow.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

This is my story. After a lifetime of trying to help everyone else get their lives together, I have finally figured out how to get mine together. I am now 72 years old, semi-retired from a business I created to help young adults with autism function in the world. I live in Mexico with my loving partner. I have fulfilling relationships with my adult children and grandchildren.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her 40-year relationship. She describes building a life together, from sharing pets and travels to getting married.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

Autism is the fastest growing and most common developmental disorder. Imagine the frustration and anxiety over taking your child to a team of medical specialists to be told that they have a lifelong and often debilitating developmental disorder with no cure and limited treatment options? Lauren's parents knew something was different about her from the time she was an infant but as she entered Kindergarten in the fall of 1986 her differences were very obvious to everyone around her as compared to other children her age.

Time in nature supports our well-being. For people who are neurodivergent, it can also stimulate our senses, feed our curiosity and help us find others who share our deep passions. But why do natural environments have such profound effects? If children with autism, ADHD and other neurodivergences spend more time outdoors, could it improve their educational experiences and outcomes? And if they nurture nature connections into adulthood, could this form the roots of their identities?