Disability Biography

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

2020 was a hard year for everyone. In this journal, learn how one woman experienced the pandemic while also having to deal with the effects of having bipolar disorder. From the book: "Truth is best expressed as silence. Words are our creations. They come and go, live and die. They are incapable of expressing what is real. This has been a journal of a false identity assuming itself to be real. From this new vantage point, I see how I am creating this story. Today I start a new chapter. Or maybe it is just a page. Even if I could just cobble together a sentence. Make it meaningful!"

Lorenzo Amurri non nasce come scrittore, lo diventa in seguito a un tragico incidente di sci che, a soli 26 anni, frantuma la strada artistica sulla quale viaggiava sin da giovanissimo: chitarrista rock, produttore musicale. Un ragazzo dinamico e trasgressivo senza mezze misure. Dall'incidente e dalla sua nuova condizione segnata dalla tetraplegia e dall'impossibilità di stringere ancora tra le braccia la sua chitarra, Lorenzo rinasce. Nel 2008 decide di affidare al suo blog Tracce di ruote "riflessioni, denunce e cronaca della sua seconda vita".

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

The story of Dr Amo Raju OBE DL is truly remarkable. Today, he is a multi-award winning member of society. Yet as a disabled child to present day, many around him have attempted to determine his future according to their own limiting expectations which led him to a thirty-year secret ‘relationship’ with depression. Authors Amo and Mani have ensured the protagonist, AJ Rai, based on Dr Amo Raju OBE DL, takes you on a journey of pain, heartache, laughter and triumph whilst capturing real-life scenarios which will keep you gripped to the next chapter.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.

See? is an inspirational autobiography that describes how God's grace and the firm, loving support from family, friends, neighbors, an exceptional teacher, and caring supervisors guided the author through life's challenges. It also debunks common myths of blindness and discusses adaptive equipment used by the author on her journey.

This book is based on real-life events and is a raw and authentic account of a true fight for life and justice—a memoir of a mother’s love for her daughter, Rachel, who is diagnosed with severe cerebral palsy, a condition which makes her incapable of voluntary movement or speech. It tells of hopes and fears, and the true meaning of what it’s like to be the mother of a daughter with severe cerebral palsy. It portrays Rachel’s passion for life and her mischievous sense of fun.

Do you like sex, drugs, and rock 'n' roll? Do you know what jails, institutions, and death are all about? I don't want to be controlled, but can I control myself? Who says I have to live by society's rules?

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

You'll relate, you'll cry, and you'll want to learn more. A story of triumph over tragedy, again. In this moving tale, you'll follow Cristi Bundukamara's life as a blissful newlywed who hopes to give back to the world. Her family grows quickly in the form of both biological and adopted children. Cristi has all that she hoped for and more when a senseless drowning rocks her family. While struggling to pick up the pieces, more tragedy ensues and Cristi has to dig deep to keep moving forward.

Negli ultimi decenni si è verificata una profonda rivoluzione nella cura della sclerosi multipla, una disfunzione del sistema immunitario che colpisce 122.000 italiani e 2,5 milioni di persone nel mondo. Grazie allo sviluppo di nuovi farmaci sempre più efficaci e a fondamentali scoperte, dai fattori di rischio genetici e ambientali al ruolo rigenerativo delle cellule staminali nel cervello, ora, finalmente, la vita delle persone che soffrono di questa malattia è sempre più vicina alla normalità.

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

It’s 1970, and Jerry Walker is six years old. His consciousness revolves around being a member of a church whose beliefs he finds not only confusing but terrifying. Composed of a hodgepodge of requirements and restrictions—including a prohibition against doctors and hospitals—the underpinning tenet of Herbert W. Armstrong’s Worldwide Church of God was that its members were divinely chosen and all others would soon perish in rivers of flames.

Tales from my Yellow Room is a first-hand account of the challenges of living with a congenital disability, and the invisible difficulties society adds to such a life. Written with candor and humor, this Scottish-American story may change people’s perception of disability.