Disability Biography

In 2018, I suffered a massive cerebral stroke at the age of 24 after cracking my neck. I woke up in a hospital with little knowledge of myself, the world, or any grounding in reality because of the damage to my brain, along with left-sided paralysis.

Nujeen Mustafa ha sedici anni e soffre di una grave forma di paralisi cerebrale che l'ha costretta su una sedia a rotelle e le ha impedito di frequentare la scuola pubblica. Ma questo non l'ha fermata: ha imparato l'inglese guardando le soap opera americane trasmesse dalla tv del suo paese e nello stesso modo ha studiato storia, letteratura, scienze.

A Michele La Pusata, dodici anni fa, è stata diagnosticata la Sclerosi laterale amiotrofica, meglio conosciuta come SLA. Prima, la sua era una vita più che normale, tra figli, lavoro e piccole incombenze, poi non lo è stata più. Non si mette mai in conto di affrontare una malattia lenta e invalidante come questa e infatti nessuno è preparato.

In this moving memoir, Joy Clausen Soto vividly brings us into her world. We see her go from her dream job to fighting for her life, and how she is able to come back from it all. You can't avoid falling in love with her quirks, indomitable spirit, and wry sense of humor. Soto takes listeners on a compelling journey as she faces cancer and the challenges she encounters while re-entering "normal" life.

Shot point-blank in the side of the neck, Michael Kiel was completely paralyzed from the neck down on April 16, 1993. As a 19-year-old sophomore at Penn State - Altoona campus, the world he knew vanished. It was turned upside down and inside out, and the next four months in the hospital and rehab center would test every fiber of his being. This memoir is about his perspective on life - his entire life - before, during, and after a life-altering spinal cord injury.

What were you doing when you were 22? Where were you in the world? What did you want to do with your life? Ben Parkinson was a six-foot-four-inch paratrooper. He was in Afghanistan fighting for his country. He wanted to always be a soldier, to be a father and to get home in one piece. But we don't always get what we want. So the question is: how do we react when that happens? Easy: you find something new to fight for.

Parenting can be a struggle, especially parenting a disabled child. In this flawlessly crafted memoir, Kramar describes championing her son, diagnosed with Sotos syndrome, through his short life. She examines the experience of loving and losing a child and reminds us that there is a way forward through the grief. Kramar’s memoir offers guidance, wisdom, and inspiration - an amazing story of redemption and hope.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

Blind from birth, Graeme Innes was blessed with a family who refused to view his blindness as a handicap, instilling in him a belief in his own abilities; blessed with a determination to persevere. After a long and successful career as a lawyer, company director and Human Rights Commissioner, Graeme has written his story. Finding a Way shares his memories of love and support, challenges, failures and overcoming the discrimination so many people with disabilities face.

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

Don entered the workforce as a young man barely out of high school, full of enthusiasm and idealism. He soon received a reality check about corporate America. Raised in the middle class, he believed in the value system of an honest day's work for an honest wage. That by doing what was "right" and working hard, he would succeed. The Company Store, however, had other plans for him and his coworkers - the American working class.

A gorgeously crafted memoir about resilience, family, and forging your own way, by a woman born without legs. At the age of three, Eileen Cronin first realized that only she did not have legs. Her boisterous Catholic family accepted her situation as "God's will", treating her no differently than her 10 siblings, as she "squiddled" through their 1960s Cincinnati home. But when starting school, even wearing prosthetics, Cronin had to brave bullying and embarrassing questions.

In Laughing and Crying Alone, we are offered a compelling account of the struggles associated with bipolar disorder. Alternately heartbreaking and uplifting, we follow Lisa through the laughter and the tears. Exploring Lisa's feelings of isolation, Laughing and Crying Alone provides compassion and validation to those with mental illness while shedding a much-needed light on mental health. And through it all, we see a wife and mother come to terms with the uncertainties of living with bipolar disorder and reemerge to embrace the new normal with confidence and ease.

Finding Re2pite is a diary that uncovers how suffering can impact the heart of the fitness-minded. Within this audiobook, you'll learn how suffering breaks us, shapes us, and sends us. Whether it's providing wheelchairs in third world countries or helping parents with local respite care, any exposure to those impacted by special needs will help you realize what is significant and what is not.

Joe Secrist was born with a rare condition called coloboma, which means that part of the one or more structures inside an unborn baby’s eye does not fully develop during pregnancy. A coloboma occurs in about one in 10,000 births. He was not diagnosed until his early childhood and was considered the clumsy boy who crashed his bike. This is Joe’s story and his account of life during his years of abuse and neglect. Once sent away, his abuse continued at the Indiana School for the Blind. Joe has kept his silence until now.

Penny Fisher is on vacation with her family when she becomes ill and disoriented. An urgent care facility reads her temperature at 104.5 and sends her by stretcher to the emergency room. There, doctors find nothing wrong, and they send her home. Twenty-four hours later, Penny is on life support and her husband is told to say his goodbyes.

Life is difficult for many people who face great dilemmas. For them, life can be a blur. However, this statement will be quite literal when you only put yourself in my shoes. For years now, I have suffered. During my teenage years, I was diagnosed with an untreatable nerve condition that tragically made me lose my sight within a speck of time. Since then, I had to learn and adapt to my new way of living—as a young blind adult.

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.