Disability Biography

Sugar Mamas is a book of personal stories of women who have a condition called lipedema, which affects 11% of women in the world and results in often debilitating fat deposits in the legs, thighs, hips, arms and other areas. While lipedema is primarily a woman's disease, the research on the condition has only in the last five years really taken off, so the causes and treatments are still in early research stages.

This book is a reflection of a mother’s experience when her daughter, after a sudden severe headache, was diagnosed with a torn brain aneurysm and arteriovenous malformation in the cerebellum. TJ, Evie’s brother, also shares his experience.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

Martin Hibbert was left paralysed from the waist down by the Manchester Arena bombing which killed twenty-two people on 22 May 2017. Martin’s teenage daughter Eve was one of the 940 injured, in Eve’s case, gravely. The dad from Bolton has since become a leading campaigner both for victims of the atrocity and those with spinal cord injuries. Determined to make a difference he took on the ultimate challenge, scaling Kilimanjaro in a wheelchair, becoming the second paraplegic to do so, and raising a million pounds for charity.

Always With Me is a true story about the life of Moses Macias as he grew up in and out of the hospital for twenty-one years. He was born with spina bifida and cleft lip. As a result, he would have to endure dozens of surgeries as he would fight for his life growing up. Always With Me also details other struggles of growing up disabled such as bullying, depression, suicide, medical abuse, sexual abuse, and pain of receiving medical treatment throughout his life. Despite all the trauma he endures in life, he finds his faith in God.

How a mechanic rose above poverty and chronic anxiety to build a national enterprise and found peace with himself and his past in the process. Prepare to embark on a journey of emotions. This must-listen memoir explores the resilience of the human spirit. I literally could not stop reading From Turmoil to Triumph.

What if you found out in mid-life that you were autistic? Kathleen was diagnosed in midlife with autism, and in her new book, U Don’t Seem Autistic, she bravely shares her personal story. This is a story of empowerment by the discovery of autistic identity, at last! By sharing the pitfalls she has experienced up to mid-life and their relationship to autism, she hopes to help others to seek a diagnosis, as she states women are missed or misdiagnosed due to the gender inequities of diagnosis.

Nujeen Mustafa ha sedici anni e soffre di una grave forma di paralisi cerebrale che l'ha costretta su una sedia a rotelle e le ha impedito di frequentare la scuola pubblica. Ma questo non l'ha fermata: ha imparato l'inglese guardando le soap opera americane trasmesse dalla tv del suo paese e nello stesso modo ha studiato storia, letteratura, scienze.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

Told through an experimental mix of intimate anecdotes and interactive visuals, this book immerses listeners in Emmy Award–winning documentary filmmaker James Robinson's point of view, allowing them to see the world through his disabling eye conditions.

I wanted to write a book to uplift mentally ill people of the harshest variety, schizophrenic or schizoaffective like I have. I wanted to tell the story of my own life, like some people see me. I am not a pitiable sad case. I am a hero who’s gone on adventures. Sometimes I was unstable, but that is not the purpose of my story.

Follow the journey of Tanita Allen, a courageous Black woman confronting the challenges of Huntington's Disease. We Exist documents her harrowing two-year struggle for a diagnosis while living in a toxic NYC apartment that triggered the early onset of her condition. Learn how she wages an impossible, decade-long legal battle against those responsible, unveiling the staggering barriers faced by marginalized communities in both medical and legal systems.

My name is Christopher Miller, the view I happen to have is a view from a wheelchair. I live with spastic cerebral palsy which affects my mobility and speech. I believe that people with disabilities need to be involved in the political process. I just happen to have A View From a Seat.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

Cassy is the first of her generation born into a Christian Lebanese family after they emigrated to Australia, and she was set to be the golden grandchild. But when it was discovered that she had cerebral palsy, the promise of her wonderful future vanished, and a veil of shame descended. Now an embarrassment to the family, Cassy was hidden away from the community, just tolerated at home, and told she was an embarrassment, useless and would have no future.

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.