Disability Biography

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.

Kelley Jo Burke embarks on a wild journey to understand many things, including the part where her grandfather sort of murdered her grandmother. Returning to a house filled with her first memories of childhood, she begins to explore the complex origins of her own anxiety. Along the way, she reflects on alienation and immigration, mental health and generational trauma, and the nature of memory itself. A memoir filled with raw honesty, comedy, tragedy, and grace.

The world spun and rolled as I collapsed at Macy’s in San Francisco to the voices of Christmas carols being sung and bells ringing. Fresh out of the ICU and a week later, a beige man gave me a beige folder with a dark diagnosis that would color the rest of my life - multiple sclerosis. This set off a tidal wave, a tsunami inside of me that ravaged my body and crushed my lungs. The MS Diaries is a memoir that seeks to impart the journey inside one man’s mind struggling with a severe chronic illness through uncensored personal anecdotes and humorous situations.

While preparing to deploy with the US Army, Marcus suffered a severe spinal injury that left him paralyzed. After dying on the operating table twice, the surgeons saved his life, but told him he'd never walk again. Having no other option, Marcus started doing some brutally honest soul-searching, looking for the lesson to be learned from his injury. Once he started seeing his adversity as a gift instead of a curse, something miraculous began to happen....

Learn about narcolepsy and one persons struggle living with the disease before and after diagnosis. Have you ever woke up and not known where you were or how you got their? You may have narcolepsy. Have you ever laughed so hysterically you fell down motionless? You may have cataplexy. Have you ever been accused of being drunk or on drugs, even though you know you were not?

Robert Mercer's life could have been very different. He was born with very low vision and as a youngster struggled in school. But through the intervention of a caring teacher and the support of his family, he found his way to the Halifax School for the Blind and into the classroom of Mrs. Beaton. It was there he discovered his voice, a voice he uses to recount his remarkable journey from a shy little boy to a community leader.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Nadeem's journey is a story told by a mother about her son—it’s not just about a mothers love, it also shows his compassion towards her, his siblings, family and friends. It shows us how he never let his illness define who he was even when the doctors were curt and less kind with their delivery of information. This book tells us the story about a fight to survive, a story about a mother’s love for a child and a story about how a community comes together to support each other.

Wie können wir Inklusion endlich umsetzen? Eine so persönliche wie politische Geschichte. 2016 wird Hadija Haruna-Oelker Mutter eines behinderten Kindes. Immer wieder trifft sie auf Barrieren und trennende Systeme, die seit Jahrzehnten bekannt sind: Bürokratie, pseudoinklusive Schulen oder unhinterfragte Diskriminierungen und Abwertungen im Alltag.

During an ordinary Fall afternoon, Kimber Hanchey-Ogden was delivered devastating news: Seth, her 17-year-old son, had been hit by a car and airlifted to a hospital! Having sustained a traumatic brain injury, doctors told her that if Seth made it, he would never be able to walk or talk; he would not remember his past or understand humor. And that was just for starters.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

This book is about one mom's journey in raising a child with special needs. Her daughter Lydia has Down syndrome. This is the story of their life together. Kerry Lynn Patton shares the blessings, trials, and what their family has learned by having Lydia in their lives. This is not meant to be a “How To” book for raising a child with special needs, but rather a book to encourage moms, dads, family, and friends. This delightful book is written in whimsical and heartfelt “snippets" for the listener to enjoy a little at a time or easily in one sitting.

An ambulance rushed her away to the emergency room at a local hospital. Her life was forever changed in that moment. In this powerful memoir and inspirational self-help book, Kimberly Muka Powers shares her triumphant story of living with bipolar type one disorder with psychotic features. Humbled by this life-altering mental health diagnosis, she learns to rise above the setbacks of her illness and empowers others to do the same.

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

Adventurous international teacher, Amy Bovaird, is diagnosed with Retinitis Pigmentosa, a hereditary eye disease that will blind her. In spite of that, she manages to continue teaching overseas. Then her father's final illness brings her back home for good. There, friends and acquaintances begin to notice that she doesn't always recognize them and sometimes stumbles as if drunk! Insensitive students ridicule her in the classroom.

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Carla Sosenko was born with Klippel-Trenaunay Syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back,­­ a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Ellen Keane spent most of her teens uncomfortable with her limb difference and battling to hide her insecurities. It was only when she embraced her difference that she found her superpower. She started to believe in her unique abilities and gradually find the success that she had never dreamed possible. Perfectly Imperfect is for anyone struggling to accept who they are. With anecdotes from her own life, practical advice and good-natured humour, Keane challenges you to let go of waiting until everything is perfect and instead embrace your imperfections and accept who you are, flaws and all.

Blind Vision is a fascinating account of a unique and inspiring career in open-water swimming. But more than that, it is a story for anyone that’s ever been told they can’t. James Pittar is living proof that no matter what the odds, with dedication, passion, and the right people around you, you can.