Disability Biography

Carly-Jay Metcalfe was born with cystic fibrosis, survived a double-lung transplant at the age of 21 and faced a rare cancer at the age of 30. What she has endured should have killed her, but her humour, courage and optimism became her best survival skills. From her hospitalised childhood to her many friendships, loves and losses, Metcalfe shares the fickle nature of life with candour and warmth. She writes with compelling insight about organ donation, opioid addiction and survivor's guilt, while still managing to find joy amongst the wreckage.

It’s 1970, and Jerry Walker is six years old. His consciousness revolves around being a member of a church whose beliefs he finds not only confusing but terrifying. Composed of a hodgepodge of requirements and restrictions—including a prohibition against doctors and hospitals—the underpinning tenet of Herbert W. Armstrong’s Worldwide Church of God was that its members were divinely chosen and all others would soon perish in rivers of flames.

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

What if you found out in mid-life that you were autistic? Kathleen was diagnosed in midlife with autism, and in her new book, U Don’t Seem Autistic, she bravely shares her personal story. This is a story of empowerment by the discovery of autistic identity, at last! By sharing the pitfalls she has experienced up to mid-life and their relationship to autism, she hopes to help others to seek a diagnosis, as she states women are missed or misdiagnosed due to the gender inequities of diagnosis.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

Treatment for anxiety all too often includes medication—but at what cost to the patient? After struggling with a lifetime of clinical anxiety, author and artist Lenny Gallo was confronted with the decision to try medication to help manage his symptoms. The medication did not work as expected and caused a misunderstood and often misdiagnosed movement disorder.

This is Nadina LaSpina's story - from her early years in her native Sicily, where she contracts polio as a baby, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness, to her adolescence and youth in America, spent almost entirely in hospitals where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her, and to her rebellion and her activism in the disability-rights movement.

Many people give up on God. It’s easy to trust in his goodness and strength when life is easy. But how do we persevere in our faith when life gets hard? Few people can show us how to do that better than Allan Schwartz.

Jump in the passenger seat as I navigate you through my journey of blindness, sexual abuse, mental illness, and various other medical conditions and tragedies. I will take you on the twists and turns of single motherhood and dating with a disability, all while only having the use of one arm. Join me for an emotional, yet exciting, ride to see how I end up at my current destination.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity.

Recycled Human is a continuation of my first book, Damaged Goods, but Recycled Human is aimed more at the re-entry into the general public. A big part of that shift involves various "transitional services" which are in fact not helping people. In fact, the services meant to help a person like me develop can be yet another oppressive system. When a person wants to change and truly is ready to face change, it can be challenging to find genuine resources. So here it is...this is my testimony of what I saw in myself and the system that needed changing.

Raising Will is a heartfelt, humbling memoir written by a Texan-turned-Minnesotan mother and child psychologist. Her heart breaks for Will when he is repeatedly banned from Fun Friday in first grade shortly after he is diagnosed with ADHD. The family zigzags through an obstacle course of therapy, medication side effects, tutoring, and sleepless nights, while shining a light on Will's inherent strength - blues guitar. Listeners will surely recognize themselves in this story and find solace, laughter, and hope as they celebrate the surprising blessings ADHD can bring.

Unblinded is the true story of New Yorker Kevin Coughlin, who became blind at age 36 due to a rare genetic disorder known as Leber's hereditary optic neuropathy. Twenty years later, without medical intervention, Kevin's sight miraculously started to return. He is the only known person in the world who has experienced a spontaneous, non-medically assisted regeneration of the optic nerve. Unblinded follows Kevin's descent into darkness and his unexplained reemergence to sight.

The author describes in detail all the insanity, disturbing behaviors, oppressive symptoms, and various feeling associated with the mental battles within her own mind. The author suffers from clinical depression, bipolar disorder, schizophrenia, schizoaffective disorder, and borderline personality disorder. She struggles with suicidal thoughts and attempts, self-mutilating behaviors, mania, paranoia, anxiety, and psychosis with intense hallucinations of all five of her senses, and multiple delusions, including the belief that she is the "second-coming of Christ".

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

Hai cinque anni, due sorelle e desidereresti tanto un fratellino per fare con lui giochi da maschio. Una sera i tuoi genitori ti annunciano che lo avrai, questo fratello, e che sarà speciale. Tu sei felicissimo: speciale, per te, vuol dire "supereroe". Gli scegli pure il nome: Giovanni. Poi lui nasce, e a poco a poco capisci che sì, è diverso dagli altri, ma i superpoteri non li ha. Alla fine scopri la parola "Down", e il tuo entusiasmo si trasforma in rifiuto, addirittura in vergogna.