Disability Biography

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

Given an epilepsy diagnosis at age 49, Linda’s once solid life fell apart. Her seizures uncontrolled by medications and with no access to treatment, Linda had no choice but to seek help in another province. From 2016 to 2018, she travelled between BC and AB, spending up to four weeks in a hospital apart from family and friends.

Sally Hobart Alexander continues the story of her journey into blindness in this uplifting tale of a life rebuilt and love renewed. Suzanne Toren’s perceptive narration perfectly expresses the emotions of Sally’s sometimes fun, often arduous, and always interesting journey. Also available is Taking Hold, My Journey Into Blindness, which tells the first half of Sally’s story.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.

Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel’s severe Treacher Collins syndrome - a craniofacial condition - meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But Nathaniel looks at “normal” from a completely different perspective.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

While preparing to deploy with the US Army, Marcus suffered a severe spinal injury that left him paralyzed. After dying on the operating table twice, the surgeons saved his life, but told him he'd never walk again. Having no other option, Marcus started doing some brutally honest soul-searching, looking for the lesson to be learned from his injury. Once he started seeing his adversity as a gift instead of a curse, something miraculous began to happen....

Before a surfing accident caused 33-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again, he'd gone against the grain to maximize time for his passions - surfing, skateboarding, and snowboarding - bringing him into the direct path of colorful characters, unexpected adventures, and even the occasional brush with death. Through it all, Devon's commitment to outdoor adventure never wavered.

From the time she was a toddler, Lou Ann Walker acted as the ears and voice for her parents, who had lost their hearing at a young age. As soon as she was old enough to speak, her childhood ended, and she immediately assumed the responsibility of interpreter - translating doctors’ appointments and managing her parents’ business transactions. Their family life was warm and loving, but outside the home, they faced a world that misunderstood and often rejected them.

They were part of the Baby Boomer vanguard, three boys thrown together in a 1950s Southern California subdivision looking like most other boys of that era. Under coonskin hats they ran free all summer long inventing their own games and endless challenges, fought imaginary Indians and pirates in a nearby orange grove, and on occasion battled a neighborhood bully or two. Their greatest enemy, however, was an infectious disease called polio – a paralyzing scourge that maimed and too-often killed little kids.

In her memoir Do You Dream in Color?, Laurie Rubin looks back on her life as an international opera singer - who happens to be blind. From her loneliness and isolation as a middle school student to her experiences skiing, Rubin offers her young listeners a life story rich in detail and inspiration drawn from everyday challenges. Beginning with her childhood in California, Rubin tells the story of her life and the amazing experiences that led her to a career as an internationally celebrated mezzo-soprano.

Don entered the workforce as a young man barely out of high school, full of enthusiasm and idealism. He soon received a reality check about corporate America. Raised in the middle class, he believed in the value system of an honest day's work for an honest wage. That by doing what was "right" and working hard, he would succeed. The Company Store, however, had other plans for him and his coworkers - the American working class.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.

In April of 2004, the long downward spiraling of Amy Bingaman's mental illness could no longer be hidden or ignored much less written off as a side-product of a colorful and quirky character. With no family able to help and no resources, she was involuntarily locked up in the draconian, archaic labyrinth that is the Wyoming Mental Health System. Armed with only a pocket dictionary and any paper she could find to write on, Amy wrote not only as a journal but at times as her only coping mechanism to salvage what was left of a breaking mind in a love/hate relationship with her alter-ego.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.