Disability Biography

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.

Kelley Jo Burke embarks on a wild journey to understand many things, including the part where her grandfather sort of murdered her grandmother. Returning to a house filled with her first memories of childhood, she begins to explore the complex origins of her own anxiety. Along the way, she reflects on alienation and immigration, mental health and generational trauma, and the nature of memory itself. A memoir filled with raw honesty, comedy, tragedy, and grace.

The world spun and rolled as I collapsed at Macy’s in San Francisco to the voices of Christmas carols being sung and bells ringing. Fresh out of the ICU and a week later, a beige man gave me a beige folder with a dark diagnosis that would color the rest of my life - multiple sclerosis. This set off a tidal wave, a tsunami inside of me that ravaged my body and crushed my lungs. The MS Diaries is a memoir that seeks to impart the journey inside one man’s mind struggling with a severe chronic illness through uncensored personal anecdotes and humorous situations.

While preparing to deploy with the US Army, Marcus suffered a severe spinal injury that left him paralyzed. After dying on the operating table twice, the surgeons saved his life, but told him he'd never walk again. Having no other option, Marcus started doing some brutally honest soul-searching, looking for the lesson to be learned from his injury. Once he started seeing his adversity as a gift instead of a curse, something miraculous began to happen....

Learn about narcolepsy and one persons struggle living with the disease before and after diagnosis. Have you ever woke up and not known where you were or how you got their? You may have narcolepsy. Have you ever laughed so hysterically you fell down motionless? You may have cataplexy. Have you ever been accused of being drunk or on drugs, even though you know you were not?

Jon Sadler was four when he had his first seizure following an episode of high fever. That made him the object of constant concern to his family and dictated almost every decision he made. With medication, Jon was deemed seizure-free for several years, though his speech was permanently affected. After a college sailing accident, he had his first grand mal seizure (loss of consciousness and violent muscle contractions).

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Carla Sosenko was born with Klippel-Trenaunay Syndrome, a rare vascular disorder that resulted in a mass of flesh on her back,­­ legs of different sizes, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide, but later experimented with reckless exhibitionism in a masochistic quest to be seen. She couldn't stop worrying about how she measured up; she ruminated on the comments other people felt comfortable making about her body.

Ellen Keane spent most of her teens uncomfortable with her limb difference and battling to hide her insecurities. It was only when she embraced her difference that she found her superpower. She started to believe in her unique abilities and gradually find the success that she had never dreamed possible. Perfectly Imperfect is for anyone struggling to accept who they are. With anecdotes from her own life, practical advice and good-natured humour, Keane challenges you to let go of waiting until everything is perfect and instead embrace your imperfections and accept who you are, flaws and all.

Blind Vision is a fascinating account of a unique and inspiring career in open-water swimming. But more than that, it is a story for anyone that’s ever been told they can’t. James Pittar is living proof that no matter what the odds, with dedication, passion, and the right people around you, you can.

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

At the age of 30, Jake found himself hospitalized, grappling with the weight of anxiety, depression, and paranoia. Soon, he received the life-altering diagnosis of schizophrenia. In this intimate and illuminating book, you are invited into Jake's world, a world he shares with his mother, Laurette, through alternating chapters.

Escrito quando Naoki Higashida tinha apenas 13 anos, o conjunto de ensaios reunidos neste audiolivro conta, do ponto de vista do próprio Higashida, a experiência de ser autista. Preso em seu mundo individual, muitas vezes ele exibe comportamentos vistos como estranhos, peculiares, “inadequados”. Seja repetindo palavras e frases aparentemente sem sentido ou evitando contato visual com outras pessoas, Naoki tem uma enorme dificuldade de se comunicar e de socializar.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

The art of avoiding diabetes and its complications has been known to humankind for over 2500 years. Yet, people have not learned to live with it. Is it impossible for a person with diabetes to live healthy for his entire lifespan? Embark on an extraordinary journey with Dr. Kamal Kant Lal as he shares a deeply personal odyssey in How I Fell in Love with My Diabetes. This memoir isn't just about managing diabetes, it's an inspiring testament to resilience, self-discovery, and a radical shift in perspective towards living with this condition.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Defiant chronicles the remarkable life of Janine Shepherd, an elite ski racer whose bid to represent Australia in the Olympics was cut short by a tragic accident. She recalls the 10 days she hovered between life and death, faced with the difficult choice to let go or return to a body that would never be whole again. Defiant offers hope and encouragement for anyone facing a life challenge, sharing the author's hard-won wisdom and priceless advice for navigating one's way from loss to healing.

A raccoon bite on the arm doesn’t seem that serious, but it soon becomes a life-or-death medical crisis for Melissa Loomis. After days of treatment for recurring infection, it becomes obvious her arm must be amputated. Rewired is the inspirational, miraculous story of Dr. Ajay Seth’s revolutionary surgery that allows Melissa to not just move a prosthetic arm simply by thinking, but to actually feel with the prosthetic hand, just as she would with her natural arm. This resulted in what others have recognized as the world’s most advanced amputee.

For two decades a father kept a secret journal documenting the life of his only son, Christopher, who was born profoundly deaf. He had a simple dream of someday presenting that journal to Christopher as a special gift from father to son. But as each new challenge was surmounted, it became clear Christopher Caulfield’s story had to be shared.