Disability Biography

Trente-deux ans, c'est le nombre d'années qu'il m'a fallu pour mettre un nom sur ma différence. Comment ai-je pu "passer au travers des mailles du filet" durant tout ce temps ? Je vous révèle, au travers de ce récit parsemé d'anecdotes, comment j'ai grandi dans l'ignorance de mon syndrome. Plongez dans mon quotidien et découvrez chacune des étapes clés de mon évolution ainsi que les moyens mis en œuvre pour survivre dans ce monde parfois difficile à appréhender.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

In Voice, Adam Pottle explores the crucial role deafness has played in the growth of his imagination and in doing so presents a unique perspective on a writer's development. Born deaf in both ears, Pottle recounts what it was like growing up in a world of muted sound, and how his deafness has influenced virtually everything about his writing, from his use of language to character and plot choices.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?

In this poignant and uplifting memoir, Dancing with the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she came down with bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: “You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live.

Armando Trinidad has been facing adversity his whole life, and what has he gotten from it? He's been able to be resilient and overcome it all with strength and optimism. This is a story of resilience, of power and overcoming the most difficult situations. When you think it can't get any worse, it can, and Mando teaches us that no one else but you can pull yourself out of that situation.

Whether you’re facing your own hip replacement surgery or want to train for something like a triathlon, or you simply find yourself facing extreme challenges in your own life, this book is your guide to putting steel in your bones and doing what you may never have thought was possible.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

Most would not expect a book about a stroke to be entertaining, but this memoir will force you to laugh through a tragedy, then cry, then laugh again. Avrel Seale was fifty, did not smoke or drink, had low blood pressure, and had hiked more than two hundred miles the year a stroke nearly ended his life. In an instant, he was teleported into the body of an old man—unbalanced, shaky, spastic, and half-paralyzed. Overnight, he was plunged into a world of brain surgeons, nurses, insurance case managers, and an abundance of therapists.

A short, inspirational audiobook from Henry Fraser, a young quadriplegic motivational speaker and artist. Henry Fraser was a 17-year-old sports enthusiast and senior prefect when he broke his spinal cord and was left paralysed from the shoulders down. Life as he knew it was over, and yet, through extraordinary determination and a positive attitude, he has forged a successful career as an inspirational speaker and an artist.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.