Disability Biography

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Blindness. A tough topic to discuss? Not anymore. In this groundbreaking book, listeners will see blindness in a whole new light. In fact, the compelling and entertaining stories will not only change perceptions of blindness, they’ll make listeners forget the people featured are actually blind.

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

From the author of the viral New York Times op-ed column "To Siri with Love" comes a collection of touching, hilarious, and illuminating stories about life with a 13-year-old boy with autism that hold insights and revelations for us all.

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America.

This is my inspirational true story of childhood sexual abuse that I endured. The abuse was a secret, even to me, due to the fact that all the painful images were locked up in my subconscious for close to 37 years.

Vaneetha Risner contracted polio as an infant, was misdiagnosed, and lived with widespread paralysis. She lived in and out of the hospital for 10 years and, after each stay, would return to a life filled with bullying. When she became a Christian, though, she thought things would get easier, and they did: carefree college days, a dream job in Boston, and an MBA from Stanford where she met and married a classmate. But life unraveled. Again.

From Paralympic ski racer and YouTube star, Josh Sundquist, comes an always-funny (and sometimes-awkward) memoir about teenage misadventures. When I was 25 years old, it came to my attention that I had never had a girlfriend. At the time, I was actually under the impression that I was in a relationship, so this bit of news came as something of a shock. Why was Josh still single? To find out, he tracked down each of the girls he had tried to date since middle school and asked them straight up: What went wrong? The results of Josh's semiscientific investigation are in your hands.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

On October 3, 2005, Kapacziewski and his soldiers were coming to the end of their tour in Northern Iraq when their convoy was attacked by enemy fighters. A grenade fell through the gunner’s hatch and exploded, shattering Kapacziewski’s right leg below the knee, damaging his right hip, and severing a nerve and artery in his right arm. He endured more than forty surgeries, but his right leg still wasn’t healing as he had hoped, so in March 2007, Kapacziewski chose to have it amputated.

I know this sounds a bit cliche, but life truly is a journey. It evidences as a unique sojourn for every individual person. This is the story of a child born seventy years ago. It is a story of triumph and setbacks, of joy and sorrow, of weakness and strength. But most of all, it is a story of courage. Brian J. Woznicki was born with cerebral palsy. He was dealt a very difficult hand in life.

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

In April of 2004, the long downward spiraling of Amy Bingaman's mental illness could no longer be hidden or ignored much less written off as a side-product of a colorful and quirky character. With no family able to help and no resources, she was involuntarily locked up in the draconian, archaic labyrinth that is the Wyoming Mental Health System. Armed with only a pocket dictionary and any paper she could find to write on, Amy wrote not only as a journal but at times as her only coping mechanism to salvage what was left of a breaking mind in a love/hate relationship with her alter-ego.

Jeff Bauman woke up on Tuesday, April 16th, 2013, and he had no legs. Just 30 hours prior, Jeff was surrounded by revelry at the finish line of the 2013 Boston Marathon. The first bomb went off at his feet as he awaited his girlfriend's finish. When Jeff awoke days later from hours of surgery, rather than take stock of his now completely altered life, Jeff ripped out his breathing tube and tried to speak. He couldn't. Jeff asked for a pad and paper and he wrote down seven words, "Saw the guy. Looked right at me," setting off one of the biggest manhunts in the country's history....