Disability Biography

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

“At the beginning I was only a little mass of possibilities. It was my teacher who unfolded and developed them.” The Story of My Life, Helen Keller’s autobiography, is the story of that unfolding. It is the story of how, with Anne Sullivan as her guide, Keller developed from “a mass of possibilities” to become one of the most beloved and admired women in American history. With intelligence, humor and wisdom, Keller describes her passage, “from darkness into light, from isolation to friendship, companionship, knowledge, love.”

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle “failed” his first test—a hearing test—to the joy and excitement of his parents.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

Like many others on the autism spectrum, 20-something stand-up comic Michael McCreary has been told by more than a few well-meaning folks that he doesn’t “look” autistic. But, as he’s quick to point out in this memoir, autism “looks” different for just about everyone with autism spectrum disorder (ASD).

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”