Disability Care

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Behind our current caregiving crisis, in which a broken system has left parents and caregivers exhausted, sits a fierce addiction to independence. But what would happen if we started to appreciate dependency, and the deep meaning of one person caring for another? If we start to care about care? With a curiosity and desire to understand more fully one of humanity’s most profound and essential relationships, journalist Elissa Strauss she interrogates our societal obsession with going it alone and poses a challenge to let ourselves be transformed by the act of caregiving.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience - the positive and the negative - as a mother of a now 21-year-old son with severe autism. Lutz's human emotion drives through each moment and challenges commonly held ideas that define autism either as a disease or as neurodiversity.

The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States.

In this moving memoir, Joy Clausen Soto vividly brings us into her world. We see her go from her dream job to fighting for her life, and how she is able to come back from it all. You can't avoid falling in love with her quirks, indomitable spirit, and wry sense of humor. Soto takes listeners on a compelling journey as she faces cancer and the challenges she encounters while re-entering "normal" life.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

Come, Let Me Guide You explores the intimate communication between author Susan Krieger and her guide dog Teela over the 10-year span of their working life together. This is a book about being led by a dog to new places in the world and new places in the self, a book about facing life's challenges outwardly and within, and about reading those clues - those deeply felt signals - that can help guide the way.

What do you do when you find out that your child has special needs? Nothing prepares you for the shock of receiving a negative diagnosis for your child. The emotional rollercoaster that comes with it can leave you feeling lost and confused. You are suddenly thrown into a different world, grappling with trying to understand your child’s condition and how to care for them.

The way our lives are today, it’s only natural we all face some stress and anxiety. But when this panic becomes overwhelming and prevents you from living your life, then it’s time to take action and manage your anxiety! With this unique guide, you can learn everything about anxiety and relevant disorders so you can control your emotions and lead a peaceful life.

This is both an assessment tool and an aid to probe into your dog's brain to see whether they may suffer from a cognitive impairment. This also provides some potential modifications surrounding how you can aid your canine companion.