Disability Essays

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Caring or careless? In this powerful and moving essay, Micheline Lee tells the story of the National Disability Insurance Scheme, a transformative social change that ran into problems. For some users it has been “the only lifeboat in the ocean,” but for others it has meant still more exclusion. Lee explains what happened, showing that the NDIS, for all its good intentions, has not understood people with disabilities well enough. While government thought the market could do its job, a caring society cannot be outsourced.

We treat the body as an afterthought, until it no longer can be. Until the pain or the pleasure is too great. Sinéad Gleeson's life has been marked by terrible illness, including leukemia and debilitating arthritis. As a child, she bathed in the springs of Lourdes, ever hopeful that her body would cooperate, ever looking forward to the day when she could take her body for granted. But just as she turns inward to explore her own pain, and then the marvel of recovery, and then the arrival of her greatest joys—falling in love, becoming a mother—she turns her gaze outward.

私たちは本当に「見て」いるのか?触れて、聴いて、初めてわかる、この社会のかたち。時に鋭く、そしてあたたかく。ユーモアに満ちた随想集。

先天性疾患を持って生まれ、「生まれた時から歩けなくなることは分かっていた。」という彼が、１２歳で車いすユーザーになり、車いすバスケに出会い、銀メダルを獲るまでをまとめたヒューマンエッセイ。