Disability Memoir

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

Dr. Paul Boskind, a successful psychologist and LGBTQ+ advocate, thought he had everything under control. Diagnosed with a blinding retinal disorder at twenty-one, he defied the odds, building a fulfilling life. But years earlier than expected, his vision began to fade. The Blind Man Game is Paul’s poignant journey of self-discovery as he navigates the emotional turmoil of losing his sight and sense of self. With his future uncertain, Paul must draw on his expertise and inner strength to confront grief, fear, and a world no longer designed for him.

From being a little girl in a village in China with polio to a tech executive at Apple, Libo Cao Meyers has had quite a journey in life—a journey steeped in rich family legacy and powered by determination, growth, and love. Over the years and the miles, she’s embraced her differences and has allowed no one—including herself—to set limitations on what she’s able to accomplish. But just because she’s been successful doesn’t mean it’s been easy. Not by a long shot.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

Dive headfirst into the urban symphony of "Smelling the Taste of Sound", a riveting memoir of a newly diagnosed, neurodivergent trainee lawyer. Her sensory issues are compounded by the sirens that punctuate the daily grind of a tough, inner-city law firm. Amidst encounters with eccentric characters and surreal personalities, our protagonist navigates the chaos and unorthodox office dynamics with comical observations and resilience.

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

Hannah Daly is a pediatric occupational therapist and an advanced sensory integration practitioner who is profoundly dyslexic, dyspraxic, and has sensory processing disorder. She has multiple university degrees but still cannot read or write. In Knowing No Boundaries, she gives an honest account of living with these hidden disabilities. This book is a unique coming-of-age, feel-good memoir that strikes the balance of vulnerability and humor.

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

In this poignant and uplifting memoir, Dancing with the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she came down with bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: “You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live.

Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act (ADA) was passed, and she grew up as part of the first generation of deaf people with legal rights to accessibility services. Still, from a young age, she contorted herself to expectations set by a world that prioritizes hearing people. Now in Articulate, Kolb blends personal narrative with cultural commentary to explore the different layers of deafness, language, and voice.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

From the time she was a toddler, Lou Ann Walker acted as the ears and voice for her parents, who had lost their hearing at a young age. As soon as she was old enough to speak, her childhood ended, and she immediately assumed the responsibility of interpreter - translating doctors’ appointments and managing her parents’ business transactions. Their family life was warm and loving, but outside the home, they faced a world that misunderstood and often rejected them.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.