Disability Memoir

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

See? is an inspirational autobiography that describes how God's grace and the firm, loving support from family, friends, neighbors, an exceptional teacher, and caring supervisors guided the author through life's challenges. It also debunks common myths of blindness and discusses adaptive equipment used by the author on her journey.

Sarah’s story is one for any parent; it is not just about the highs and lows of having a child with additional needs, but also simply as a mum of three. She talks candidly about coming to terms with the decision to move Oscar to a SEN (Special Educational Needs) school, another big milestone in Oscar’s young life. Whilst Sarah may have found herself on a different path to the one she’d imagined for herself, it has not been a bad one. There is sadness, certainly; and there have been struggles along the way; but there has been so much laughter and happiness, too.

This book is based on real-life events and is a raw and authentic account of a true fight for life and justice—a memoir of a mother’s love for her daughter, Rachel, who is diagnosed with severe cerebral palsy, a condition which makes her incapable of voluntary movement or speech. It tells of hopes and fears, and the true meaning of what it’s like to be the mother of a daughter with severe cerebral palsy. It portrays Rachel’s passion for life and her mischievous sense of fun.

Do you like sex, drugs, and rock 'n' roll? Do you know what jails, institutions, and death are all about? I don't want to be controlled, but can I control myself? Who says I have to live by society's rules?

Negli ultimi decenni si è verificata una profonda rivoluzione nella cura della sclerosi multipla, una disfunzione del sistema immunitario che colpisce 122.000 italiani e 2,5 milioni di persone nel mondo. Grazie allo sviluppo di nuovi farmaci sempre più efficaci e a fondamentali scoperte, dai fattori di rischio genetici e ambientali al ruolo rigenerativo delle cellule staminali nel cervello, ora, finalmente, la vita delle persone che soffrono di questa malattia è sempre più vicina alla normalità.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

They say if you want to make God smile, tell him you have a plan. Dwight’s plan was to live his dream, teach math, coach football, and build a comfortable life for himself. Fate had other things in store for him. The story of Dwight’s physical and emotional journey from life as an able-bodied young man chasing his dreams only to have his world turned upside down by the thoughtless act of a 71-year-old drunk driver.

In No Bad Days, JT details the incredible story of how he overcame what seemed like insurmountable odds and shares the many invaluable lessons he has learned throughout his life in the hope that others might reach their full potential. These lessons include how to: find your tribe, pull off the label, stretch yourself, listen to others, and learn to fall. JT’s improbable life story is evidence that regardless of the mental and physical challenges you might face, you can defy the odds to create the life you want and accomplish the things you’ve only dreamed about.

No one would ever guess that simply hanging curtains could be life-changing! In the blink of an eye, Paula's world turned upside down as a broken leg morphed into life threatening events that pushed her reality into a darkness we only see in movies. Legless tells the story of Paula's fight to triumph over heartbreaking trauma while depression and suffering snapped at her desire to live. Unwilling to surrender for the sake of her family, she dug deep into the meaning of life at every setback and found herself changed, transformed and seeing herself through the eyes of a new normal.

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

The S Word is the raw and compelling true story of a girl coming of age raised by a mother with a mental illness, and who nearly suffocates in the silence she was taught to value above all else - until she finally finds the strength to break free of the secrets binding her and save herself. The S Word is a book for anyone who may be keeping secrets...for children too little to know they warrant a voice...for teenagers too confused to think they have a choice...for adults too overwhelmed to do what’s right.

The autobiography is told in an honest and very candid way, from the very first diagnosis in 2011 right up to the present day, showing how I was forced to crowdfund to have my leg amputated, what it took to overcome the struggles of four operations, and what it meant for me and my young family.

The Umbrella Picker tells the true story of a woman who was lost for 45 years until she learned that she is Autistic. After a long and relentless journey of searching for answers, the hand of fate finally revealed to her what she had waited a lifetime for. Learning she was Autistic was life changing. She is no longer lost, and having found her own, unique way, Jane has written the (brutally honest!) book she wished was available to her years earlier.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

In October of 2008, I was airlifted to Erlanger Hospital in Chattanooga, TN, after a head-on collision with an SUV while riding a motorcycle. When I woke up, I was told I would never walk again or have full use of my hands. Seventy-eight screws, 13 plates, 25 units of blood, and more than 400 stitches and staples later, I became very familiar with physical pain and haven’t had a pain-free day since. That physical battle was harder than I could even begin to explain, but it doesn’t really come close to the one that I went through inside of myself over the years that followed.

Lillian was a college freshman, a promising theater major facing the challenge of Stargardt’s disease, a condition that was causing her to go blind. When, in the fall of 2009, Lillian became sick, she assured her parents it was just the flu. Four days later she was in the university hospital, relying on a machine to breathe for her. Based on her father’s journal, this memoir describes what it’s like to live through a parent’s worst nightmare, conveying the heart-wrenching ups and downs of Lillian’s time in the hospital.