Disability Memoir

A two-week vacation to the Florida Keys meant Mary and Jameson Sr. could share the beauty of their favorite turquoise-blue waters with their four children. On that serene day at Looe Key Reef, after they finished lunch on the boat, their oldest, ten-year-old Jameson Jr., was swimming among the marine life, capturing breathtaking footage of a sea turtle. Until a massive bull shark attacked.

I matti ci incuriosiscono, ci costringono a riflettere, ci cambiano lo sguardo, ci mettono davanti ai nostri fantasmi, non ci lasciano mai indifferenti. La storia dell’uomo è costellata di individui eccentrici, bizzarri, anticonformisti, visionari, in molti casi con disturbi psichici gravi, ma altamente creativi in campo letterario, artistico, scientifico. Partendo da queste considerazioni, è nata l’idea di una sorta di calendario che racconti, al posto del santo del giorno, il matto del giorno.

I Sverige finns mer än en miljon anhöriga som vårdar eller stöttar en närstående med fysisk eller psykisk ohälsa eller funktionsnedsättning. Även om var och en har sin unika historia är det mycket som förenar oss. Anhörig i ett hav av känslor ger röst åt våra berättelser. Om ovisshet och oro, otillräcklighet och frustration, skuld och skam, sorg och maktlöshet. En situation som kan utveckla oss som människor, men också utmana och slita ut oss. Det handlar om avgrunder och guppande känslohav, men också om stillsamma solgläntor och fascinerande utsiktsplatser.

"Det var inget jag hade valt, detta att inte höra ihop med dem. Det var bara så att jag inte gjorde det. Jag kunde inte ändra på det och jag visste inte vad en människa var meningen att vara. Inuti kände jag mig ledsen. Varför blev de alltid så arga? Varför begrep de inte?". Redan i tidig ålder insåg Gunilla Gerland att hon inte var som alla andra. Hon ville gärna röra vid saker som var böjda, undvek helst att tugga maten och hade ett stort behov av att få vara ifred.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

Born four weeks premature and weighing little more than five pounds, Scott A. McCreight had a rough start and uncertain future. He was placed for adoption, but the good news didn’t last long: shortly after, Scott was diagnosed with cerebral palsy. Developmental delays permeated his childhood, the odds for a “normal” life seemingly stacked against him.

This book is about one big rollercoaster. It's about a girl who has CP (cerebral palsy) and the challenges she has faced throughout her life. A girl who is lucky to be blessed with people who stood beside her all the way. A girl who tries to do it all and doesn't let her CP get in the way of life. She just goes with it!

Dharana nos cuenta en este alentador relato su inquebrantable fuerza interior frente a la experiencia de la enfermedad y cómo cultivar la energía del amor y la comprensión le han liberado del miedo. Le han hecho seguir siempre adelante siendo este su lema, por más difícil que la vida se lo haya puesto.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

You'll relate, you'll cry, and you'll want to learn more. A story of triumph over tragedy, again. In this moving tale, you'll follow Cristi Bundukamara's life as a blissful newlywed who hopes to give back to the world. Her family grows quickly in the form of both biological and adopted children. Cristi has all that she hoped for and more when a senseless drowning rocks her family. While struggling to pick up the pieces, more tragedy ensues and Cristi has to dig deep to keep moving forward.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

I Kept Walking opens in 1940s Tehran when a misguided prank leaves three- year-old Minou frozen in fear. Days later, a doctor breaks the news to her mother: "Your daughter has polio." To understand why nothing is as it seems-the cause of her polio or why her dutiful Jewish mother, who was married off at 13, thwarted her dream of marriage, Minou must flee Iran and confront the psychological toll of her polio. I Kept Walking is the audacious account of a bold young woman who was unwilling to be crushed by polio or the prohibitions of a conservative society.

Left partially paralysed below the rib cage by polio, Anne Wafula Strike was forced to flee her native Kenyan village, moving across the country with her family. After overcoming additional adversity, including the loss of her mother and ableist prejudice, Anne moved to the UK, where she discovered her talent for wheelchair racing. The first East African to compete in her sport, representing Kenya in the 2004 Paralympics before joining Paralympics GB, Anne is now a fierce advocate for the promotion of the games around the world, and a champion of disabled rights.

Born deaf and discovering encroaching blindness at the age of 16, Anthony Lawton’s future appeared to be full of locked doors. Prejudice. Delayed education. Distorted speech. Limited sight. But when benign strangers intercede and inner gifts reveal themselves the opportunity to pursue a childhood dream of speaking and participating in mainstream society become a realisable vision. He would need to do this before the consequences of dual sensory loss would again close the doors.