Disability Memoir

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

"Dandelion Roots Run Deep" is the true story of three generations of tenacious Midwestern women, one in Illinois and two in Michigan. Merry is the third generation, and her mother Merrill, fought for organic agriculture and Michigan's environment from 1967 - 2009. Merrill developed Alzheimer's before finishing her book, so Merry took her story to fruition.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

Inspirational, humorous, and thought provoking, Noah Galloway's Living with No Excuses sheds light on his upbringing in rural Alabama, his military experience, and the battle he faced to overcome losing two limbs during Operation Iraqi Freedom. From reliving the early days of life to his acceptance of his "new normal" after losing his arm and leg in combat, Noah reveals his ambition to succeed against all odds.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

In this heartfelt, thought-provoking and often hilarious book, Lottie Jackson reflects on her experiences of living with disability: from the pitfalls of going shopping on a mobility scooter, and the headache of defining oneself on a tick-box form, to a slapstick scuffle with the so-called 'easy-pull' tights aid, and the intense pleasure of finally swapping a hospital gown for a slinky dress. Lottie captivatingly expresses the raw vulnerabilities, injustices and untold joys of disability, as well as the bizarre everyday occurrences that able-bodied people usually don't experience.

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

Given an epilepsy diagnosis at age 49, Linda’s once solid life fell apart. Her seizures uncontrolled by medications and with no access to treatment, Linda had no choice but to seek help in another province. From 2016 to 2018, she travelled between BC and AB, spending up to four weeks in a hospital apart from family and friends.

BUT...GOD Gave Me a Pencil is an autobiographical memoir in which Dr. Rhonda Richmond explores her transformative journey from being abandoned by her mother to accepting her autism and learning disabilities in reading, writing, and math. Despite being functionally illiterate when she graduated high school, Dr. Richmond developed a pathway to literacy and began teaching her own children to read and write. Working with her children supported her creation of a new way to teach literacy skills, which helped her as a special education teacher and principal.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

In Imperfect, Jim Abbot retraces his remarkable journey. Born without a right hand, Jim Abbott as a boy dreamed of being a great athlete. Raised in Flint, Michigan, by parents who saw in his condition not a disability but an extraordinary opportunity, Jim became a two-sport standout in high school, then an ace pitcher for the University of Michigan. But his journey was only beginning. By 21, he’d won the gold medal game at the 1988 Olympics and cracked the starting rotation of the California Angels....

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.