Disability Memoir

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

Uncommon Vision by Matt Hendrick is a deeply moving memoir that captures the essence of human resilience. After a devastating accident leaves him paralyzed, Matt embarks on a life-changing journey that challenges both his physical limits and his perceptions of the world. From the depths of despair in a hospital bed to his adventures in the digital and supernatural realms, Matt's story is a riveting exploration of recovery, self-discovery, and the relentless pursuit of one's dreams despite the odds.

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

This English professor grew up spacey and overweight. Drowning in the unrealistic demands of motherhood, Livingston steals her son's ADHD medication and watches it transform her life—for good and bad. She grows weary of subjective diagnoses and chemical treatments from traditional psychology experts, and experiments with functional medicine—brain mapping and nutritional supplements—as a way to understand her brain's potential, bio-hacking her way to a healthy body and mind.

"Je vis avec l'autisme", écrit Josef Schovanec, soulignant ainsi ce qu'il considère plus comme une qualité que comme un handicap. Ce voyageur passionné des civilisations anciennes maîtrise une dizaine de langues, est diplômé de Sciences Po et possède un doctorat en philosophie. Il récuse pourtant les attributs qu'on lui prête - ceux d'un autiste "génial" aux capacités intellectuelles extraordinaires - pour évoquer plutôt, avec beaucoup d'humour et de sensibilité, ces "petits" problèmes qui font le quotidien d'un autiste Asperger.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

The astonishing life story from one of Australia's most inspirational athletes. Dylan Alcott has never let his disability get in the way of what he wanted to achieve. His family treated him no differently to any other kid, and it was the best thing they ever did. Growing up, Dylan always had a positive attitude to life. So when he discovered sport, he’d have a go at anything and could always be found at the centre of the action, giving his best and playing to win. Then he tried wheelchair basketball and tennis and was hooked.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka’s life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

Cassy is the first of her generation born into a Christian Lebanese family after they emigrated to Australia, and she was set to be the golden grandchild. But when it was discovered that she had cerebral palsy, the promise of her wonderful future vanished, and a veil of shame descended. Now an embarrassment to the family, Cassy was hidden away from the community, just tolerated at home, and told she was an embarrassment, useless and would have no future.

My name is Joseph A. Peragine, and I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance. Every October, I especially make it a priority to tell my family and loved ones how much I love them.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

Until sophomore year of high school, 15-year-old Allison Britz lived a comfortable life in an idyllic town. She was a dedicated student with tons of extracurricular activities, friends, and loving parents at home. But after awakening from a vivid nightmare in which she was diagnosed with brain cancer, she was convinced the dream had been a warning. Allison believed that she must do something to stop the cancer in her dream from becoming a reality.