Disability Memoir

For many years, Jeffrey Demitrack searched for a meaningful and fulfilling relationship and, most of all, hoped that one day he would find a significant other who understood and unconditionally accepted his struggles with epilepsy. People have their insecurities, and relationships already are hard without throwing seizures into the mix, so his search has been a challenging one.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

When her son was diagnosed with autism at the age of three, Irma Velasquez was devastated. It was the pre-internet era of the early 1990s, and both information and experts were hard to find. Desperate for answers, she sought out therapists and educational programs designed to teach Aaron how to become successful in school and in life. But those early years ended up teaching Irma more than they taught Aaron. Irma realized her desire to "fix" her son had been a masquerade to fulfill her own needs, and she began to love him just as he was: perfect.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?

A serious illness destroyed Helen Keller's sight and hearing before she reached the age of two. At seven, she was introduced to Ann Sullivan, the beloved teacher and friend who helped Helen to make contact with her world. Through sheer determination and resolve, Helen learned to speak, read, and write, and prepared herself for entry into prep school by the age of 16. She later enrolled at Radcliffe and graduated with honors. Her motto: "There are no handicaps, only challenges."

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

Darryl Jefferson was diagnosed with Asperger's syndrome at the age of eight and encountered many hurdles in life due to the condition. Despite this, he persevered through many challenges in school, work, relationships, and the military. In this story, he takes us on a journey through one man's experience of living with autism and its effects on school, work, relationships, friendships, and many other life challenges.

BUT...GOD Gave Me a Pencil is an autobiographical memoir in which Dr. Rhonda Richmond explores her transformative journey from being abandoned by her mother to accepting her autism and learning disabilities in reading, writing, and math. Despite being functionally illiterate when she graduated high school, Dr. Richmond developed a pathway to literacy and began teaching her own children to read and write. Working with her children supported her creation of a new way to teach literacy skills, which helped her as a special education teacher and principal.

Jeff Bauman woke up on Tuesday, April 16th, 2013, and he had no legs. Just 30 hours prior, Jeff was surrounded by revelry at the finish line of the 2013 Boston Marathon. The first bomb went off at his feet as he awaited his girlfriend's finish. When Jeff awoke days later from hours of surgery, rather than take stock of his now completely altered life, Jeff ripped out his breathing tube and tried to speak. He couldn't. Jeff asked for a pad and paper and he wrote down seven words, "Saw the guy. Looked right at me," setting off one of the biggest manhunts in the country's history....

It's not what I lost. It's what I've found. I was only 17, just a girl, when God asked me for everything I had...my health, my hopes, my independence, my dreams, my freedom, and my mobility. He took it all. I was so angry with him that I tried to push him away. God relentlessly held me more closely. Looking back, 40 years later, I understand that God has changed and healed me - my heart and my mind - in the most unexpected ways, giving me rubies of his wisdom about an unbending faith and an experience of his mercy I can now tell you about.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.

She's never taught a class in her life. But when the City of Chicago calls on blind writer Beth Finke to teach a memoir-writing class for older adults, she reluctantly agrees. What she learns about her students, their stories, and herself will move and inspire you. Written the way Beth hears life, you will come to know and love Minerva, Wanda, Hannelore, and the whole colorful cast of characters who build a community around Beth's classes. Generously sprinkled with excerpts in her students' own voices, Beth's book will convince you to get your own stories down on paper.

He grew up, he says, at "belt-buckle level" and stayed there until Kevan's beloved posse decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together! Kevan's beloved posse traveled to Paris, England, and Ireland, where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael.

This memoir combines the drastic losses which occur due to severe episodic memory deficits with the greater agency currently afforded to all of us as made capable via ingenuity and technology. In this book memory loss is considered within the present-day environment of novel solutions heretofore unimaginable. All of us may never need to worry about recalling key life events ever again.

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.