Disability Memoir

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

What would you do if it happened to you? If you awoke one day when you were twelve years old to be informed that your life was suddenly over? Well . . . Here is what I did. If you became the wealthiest person you would ever know just three and a half years later? What would that be like? Well, this is what it was like when it happened to me.

At the age of thirty-one, Dave Kelly lost his eyesight to a rare disease called retinitis pigmentosa (RP). Up until then, he had lived a life like any other young man, albeit one blessed to be growing up in Liverpool during the heyday of The Beatles and Liverpool FCs win against Leeds in the 1965 FA Cup. But then, one day everything changed. Dave was faced with a choice. He could either let blindness defeat him or he could face it head-on and live as fulfilling a life as he possibly could.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

From our family to yours, here are humorous stories from our crazy past, mixed with ideas for handling some of the issues facing a family raising kids with autism. Inside you will find ideas for stimming aids, dietary help, and even links to companies who hire adults with autism. Humor, hope, and help for families like yours traveling Through the Wormhole.

Penny Fisher is on vacation with her family when she becomes ill and disoriented. An urgent care facility reads her temperature at 104.5 and sends her by stretcher to the emergency room. There, doctors find nothing wrong, and they send her home. Twenty-four hours later, Penny is on life support and her husband is told to say his goodbyes.

At 90 years old and blind, Lorraine decided there was never a better time to get started as a writer. Juggling career, marriage, motherhood, and staying a vibrant senior demands constant skill upgrading. Lorraine’s early childhood development expertise, for instance, was perfected during her 81 months of pregnancy. As a first generation of Russian immigrant parents, Lorraine’s daily walk with God is a testament to her belief and love-filled life. She says, “Hope is not a plan, but it is a promise that’s given when faith and belief become action.”

At the height of popularity for radio stations and DJs in the '70s and '80s, Curry blazed a trail for himself as “Kid” Curry. His iconic “Bed Check” segment helped propel him to star status in Miami. It followed him during his 20-year path to the dream job of Major Market program director. The perks of the job included hanging out with music legends, being invited to the White House, meeting Johnny U and a Watergate burglar, traveling around the world to find the next “number one” song and, the best part, helping listeners in need.

Emily Owen was a highly intelligent teenager who was also athletic and a skilled musician. Tragically, in her late teens she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2). Since then, Emily has survived many complicated surgical procedures, been close to death, and seen the gradual erosion of all the abilities that defined her personality including the total loss of her hearing. Despite this, she has a remarkable sense of humor and has coped with everything she has been through due to her strong Christian faith, her supportive family, and indomitable personality.

Mit drei Jahren erlitt Ingrid Mundschin-Bohn eine Hirnhautentzündung, an der sie fast gestorben wäre. In Deutschland, wo sie als Tochter eines deutschen Vaters und einer Schweizer Mutter aufwuchs, war gerade der Krieg zu Ende gegangen, die Medikamente waren immer noch knapp, und die Ärzte wollten keine Antibiotika verschwenden an einem Kind, das in ihren Augen bereits abgeschrieben war. Aber Ingrid Mundschin ließ sich nicht abschreiben, sondern wuchs zu einer lebensfrohen und selbstbewussten Frau heran.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

Alle hören auf "Daffy", nur Daffy nicht: Abenteuer Blindenführhündin - von Jennifer Mai, gesprochen von der Autorin. Alle hören auf "Daffy", nur Daffy nicht. Vor allem wenn die ansonsten so zuverlässige Blindenführhündin gerade etwas Schmackhaftes im Freilauf entdeckt hat, kostet dies Jenny, ihrer Arbeitgeberin, viel Geduld. Die hohen Erwartungen der Passanten sind bald noch schlimmer als Daffys Dickkopf. Denn die Leute vergessen eines nur allzu gern: Ein Blindenführhund macht einen verantwortungsvollen Job, allerdings ist und bleibt er immer noch ein Tier.

My name is Christopher Miller, the view I happen to have is a view from a wheelchair. I live with spastic cerebral palsy which affects my mobility and speech. I believe that people with disabilities need to be involved in the political process. I just happen to have A View From a Seat.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

My neurologist stunned me when she said, “You have multiple sclerosis, and looking at your MRI, you are a walking time bomb. You may not have symptoms today, but it’s just a matter of time.” As the MS tightened its grip on my body, I plunged deep into a myriad of strange feelings—denial and depression for over a year.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

My journey with mental illness, specifically bipolar disorder, has woven itself throughout my life for 40 years. Whether it was active, or dormant, it has always lurked in the shadows. But, this illness, like any illness, can be managed and maintained.This story is particularly relevant for today's society. It is our charge to know a segment of our society who, for the most part, is misunderstood. When the Brakes Fail provides a forum for understanding the myths, the injustices, and the stigma of mental illness.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

2020 was a hard year for everyone. In this journal, learn how one woman experienced the pandemic while also having to deal with the effects of having bipolar disorder. From the book: "Truth is best expressed as silence. Words are our creations. They come and go, live and die. They are incapable of expressing what is real. This has been a journal of a false identity assuming itself to be real. From this new vantage point, I see how I am creating this story. Today I start a new chapter. Or maybe it is just a page. Even if I could just cobble together a sentence. Make it meaningful!"

Lorenzo Amurri non nasce come scrittore, lo diventa in seguito a un tragico incidente di sci che, a soli 26 anni, frantuma la strada artistica sulla quale viaggiava sin da giovanissimo: chitarrista rock, produttore musicale. Un ragazzo dinamico e trasgressivo senza mezze misure. Dall'incidente e dalla sua nuova condizione segnata dalla tetraplegia e dall'impossibilità di stringere ancora tra le braccia la sua chitarra, Lorenzo rinasce. Nel 2008 decide di affidare al suo blog Tracce di ruote "riflessioni, denunce e cronaca della sua seconda vita".