Disability Memoir

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

In this poignant and uplifting memoir, Dancing with the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she came down with bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: “You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live.

Darryl Jefferson was diagnosed with Asperger's syndrome at the age of eight and encountered many hurdles in life due to the condition. Despite this, he persevered through many challenges in school, work, relationships, and the military. In this story, he takes us on a journey through one man's experience of living with autism and its effects on school, work, relationships, friendships, and many other life challenges.

John Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself “crippled and dependent” and in search of care.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

From the time she was a toddler, Lou Ann Walker acted as the ears and voice for her parents, who had lost their hearing at a young age. As soon as she was old enough to speak, her childhood ended, and she immediately assumed the responsibility of interpreter - translating doctors’ appointments and managing her parents’ business transactions. Their family life was warm and loving, but outside the home, they faced a world that misunderstood and often rejected them.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

My name is Joseph A. Peragine, and I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance. Every October, I especially make it a priority to tell my family and loved ones how much I love them.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.