Disability Memoir

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Hiroshima was one of the great tragedies of WWII. But out of the devastation of the first atomic bomb, some survivors emerged, 25 courageous Japanese women who became part of a remarkable humanitarian epic. Victims of the atomic blast that ushered in the Nuclear Age, these women were brought to the United States in 1955, where they underwent reconstructive surgery to repair the ravages of the bomb. Schoolgirls when the bomb destroyed their futures, they began to remake their lives and re-create themselves. This is the compassionate, often bittersweet chronicle of the Hiroshima Maidens.

Award-winning author Mark Richard delivers a fascinating and unique memoir. Born in the South with deformed hips, Richard was tagged a “special” child. Nothing was expected of him. But as a young man, he decided to strike out and experience as much of our strange world as he possibly could.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

Jen Bricker was born without legs. Shocked and uncertain they could care for her, her biological parents gave her up for adoption. In her loving adoptive home, there was just one simple rule: never say "can't". And pretty soon there was nothing this small but mighty powerhouse set her sights on that she couldn't conquer: roller-skating, volleyball, power tumbling, and spinning from silk ribbons 30 feet in the air. Everything Is Possible is her incredible story.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

Frederick Moore spent his 1950s Minneapolis childhood obsessively teaching himself guitar and writing songs. In the 1960s, his bands Skogie and the Flaming Pachucos reached local stardom. After, they put everything they had into their cars and caravanned to Los Angeles. From a garage in suburban Arleta, they evolved Skogie into a new band called The Kats. In the 1980s, The Kats sold out every major club in Los Angeles.

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

As a neurodivergent child in a hundred-year-old house, Zaji Cox collects grammar books, second-hand toys, and sightings of feral cats. She dances and cartwheels through self-discovery and doubt, guided by her big sister and their devoted single mother. Through short essays that evoke the abundant imagination of childhood, Plums for Months explores the challenges of growing up mixed race and low-income on the outskirts of Portland, Oregon.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

For two decades a father kept a secret journal documenting the life of his only son, Christopher, who was born profoundly deaf. He had a simple dream of someday presenting that journal to Christopher as a special gift from father to son. But as each new challenge was surmounted, it became clear Christopher Caulfield’s story had to be shared.

Treatment for anxiety all too often includes medication—but at what cost to the patient? After struggling with a lifetime of clinical anxiety, author and artist Lenny Gallo was confronted with the decision to try medication to help manage his symptoms. The medication did not work as expected and caused a misunderstood and often misdiagnosed movement disorder.

There are 1.3 billion people around the world who identify as having a disability. When you include friends and family, the disability market touches 53 percent of all consumers. It is the world’s largest emerging market. Unleash Different reveals how companies like Google, PepsiCo, and Nordstrom are attracting people with disabilities as customers and as employees. Replacing “nice to do” with “return on investment” allows market forces to take over and the world’s leading brands to do what they do best: serve a market segment - in this case, the disability market.

Most would not expect a book about a stroke to be entertaining, but this memoir will force you to laugh through a tragedy, then cry, then laugh again. Avrel Seale was fifty, did not smoke or drink, had low blood pressure, and had hiked more than two hundred miles the year a stroke nearly ended his life. In an instant, he was teleported into the body of an old man—unbalanced, shaky, spastic, and half-paralyzed. Overnight, he was plunged into a world of brain surgeons, nurses, insurance case managers, and an abundance of therapists.