Disability Memoir

Unexpected Joy is a book about an inspirational young man who makes friends everywhere he goes. He is not like everyone else. He has special needs. He has taken his father and others on a journey they did not choose. His father learned to embrace the journey over many years. This is a story of struggle, depression, deliverance, redemption, acceptance, and eventually joy wrapped in an adventure of a lifetime of challenges.

I Sverige finns mer än en miljon anhöriga som vårdar eller stöttar en närstående med fysisk eller psykisk ohälsa eller funktionsnedsättning. Även om var och en har sin unika historia är det mycket som förenar oss. Anhörig i ett hav av känslor ger röst åt våra berättelser. Om ovisshet och oro, otillräcklighet och frustration, skuld och skam, sorg och maktlöshet. En situation som kan utveckla oss som människor, men också utmana och slita ut oss. Det handlar om avgrunder och guppande känslohav, men också om stillsamma solgläntor och fascinerande utsiktsplatser.

"Det var inget jag hade valt, detta att inte höra ihop med dem. Det var bara så att jag inte gjorde det. Jag kunde inte ändra på det och jag visste inte vad en människa var meningen att vara. Inuti kände jag mig ledsen. Varför blev de alltid så arga? Varför begrep de inte?". Redan i tidig ålder insåg Gunilla Gerland att hon inte var som alla andra. Hon ville gärna röra vid saker som var böjda, undvek helst att tugga maten och hade ett stort behov av att få vara ifred.

Have you ever been told that you can’t do something, even if that something is your dream? Mohammed Yousuf’s Ascending Adversity will prove to you that you can.

Born four weeks premature and weighing little more than five pounds, Scott A. McCreight had a rough start and uncertain future. He was placed for adoption, but the good news didn’t last long: shortly after, Scott was diagnosed with cerebral palsy. Developmental delays permeated his childhood, the odds for a “normal” life seemingly stacked against him.

Stroke of Love is the life story of a young stroke survivor from Texas named Hether Flanigan. It is a story of resilience, determination, strength, and love. A story about the human spirit, the will to live life to the fullest, the power of the human mind, and the love that surrounds us.

L'inizio di questa storia è un incrocio nel bel mezzo di Tripoli, più che un incrocio, un'auto con un parabrezza rotto ferma a un incrocio dopo un incidente. A bordo della macchina un uomo e una donna, un padre e una madre, prima erano in tre, solo che la figlia poco più che neonata è stata sbalzata fuori dall'abitacolo e ha impattato contro un albero. Comincia così il racconto della vita di Nagla Augelli, bambina tunisina abbandonata dalla famiglia in un orfanotrofio della sua città, dopo che un incidente di auto l'ha resa paraplegica.

This book is about one big rollercoaster. It's about a girl who has CP (cerebral palsy) and the challenges she has faced throughout her life. A girl who is lucky to be blessed with people who stood beside her all the way. A girl who tries to do it all and doesn't let her CP get in the way of life. She just goes with it!

Dharana nos cuenta en este alentador relato su inquebrantable fuerza interior frente a la experiencia de la enfermedad y cómo cultivar la energía del amor y la comprensión le han liberado del miedo. Le han hecho seguir siempre adelante siendo este su lema, por más difícil que la vida se lo haya puesto.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

Es ist Nicoles zweiunddreißigster Geburtstag, als sie unter der Dusche steht und sich auf die Feier mit ihren zwei kleinen Kindern und ihrem liebevollen Mann freut. Abrupt wird sie aus ihren Gedanken gerissen, als sie einen Knoten in ihrer Brust ertastet. Eine Welt bricht für sie zusammen. Später stellen die Ärzte die Diagnose, dass in Nicoles Körper nicht nur ein hochaggressiver Tumor wächst, sondern dass sie außerdem dieselbe genetische Vorbelastung wie Angelina Jolie hat. Selbst nach erfolgreicher Therapie, bleibt die Wahrscheinlichkeit einer erneuten Erkrankung enorm hoch.

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.