Disability Memoir

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

A young man once called unteachable journeys across America to investigate the lives of those, like himself, who are forced to create new ways of living in order to survive.

On Halloween day 1990, Sterling Krysler—husband, father, pilot, newly arrived in Hawai'i—suffered a catastrophic spinal cord injury while body surfing at a local beach. Ever the optimist, Sterling accepted the life-changing injury becoming advocate and inspiration to many in the "disability community." This is a family-centered story brimming with love, joy, and humor. This is his story—before and after.

In 2017, President Obama, in his final Oval Office interview, was asked who gave him hope for the future of the country, and Jason Kander was the first name he mentioned. Suddenly, Jason was a national figure. As observers assumed he was preparing a run for the presidency, Jason announced a bid for mayor of Kansas City instead and was headed for a landslide victory. But after eleven years battling PTSD from his service in Afghanistan, Jason was seized by depression and suicidal thoughts. He dropped out of the mayor’s race and out of public life. And finally, he sought help.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

You are more than your limits. Choosing to see herself as more than a person with a disability and wheelchair user, Lolo chooses to live a bold and courageous life now because representation matters. She created this intersectional guide to provide tools for people with disabilities to thrive in personal growth, independence, and community building. Add this guide to your list of inclusion books!

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

After three long years, Johnny’s young son, Sam, experiences a breakthrough. But even as calm comes to Sam's body, the illness makes off with his mind. Violent outbursts, strange obsessions - what has happened to his sweet boy? Cinematically weaving three generations of fatherhood, Remember, You’re the Greatest is a memoir of hard questions. Of unexpected joy in the ache of mystery. And the power of a special needs child to teach a father what greatness truly looks like.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

In 2004, Mindy begins hearing a voice in her head, someone she calls "Joe," and sees signs everywhere that hold mysterious clues only for her. What she doesn't know at the time is that she is experiencing her first schizophrenic episode. For the next decade, she oscillates between two worlds -- a normal life and a secret voice-filled one -- until she begins the journey of merging her two worlds back into one. Becoming Whole documents her onset of schizophrenia and the subsequent years spent learning about it and how to live with it. It is her journey to find solace.

This book is written by the husband of a stroke victim. The husband is the caregiver of 25 years to his wife in helping her in her battle to recovery from a massive stroke. It describes some of her challenges over the years and the tools that she has used to meet these challenges to make her life easier in the world that she knows of it today.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

Find Another Dream, written and performed by Maysoon Zayid, is the true story of how a Muslim Jersey girl with cerebral palsy creates her own path to stardom. The daughter of Palestinian immigrants, as a child she dreamed of one day dancing on Broadway. As a teen, a bubble-bursting choreographer told her to “find another dream”, so she set her sights on becoming a soap star, undeterred by the fact that the odds were against her.

For two decades a father kept a secret journal documenting the life of his only son, Christopher, who was born profoundly deaf. He had a simple dream of someday presenting that journal to Christopher as a special gift from father to son. But as each new challenge was surmounted, it became clear Christopher Caulfield’s story had to be shared.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.