Disability Memoir

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

Sugar Mamas is a book of personal stories of women who have a condition called lipedema, which affects 11% of women in the world and results in often debilitating fat deposits in the legs, thighs, hips, arms and other areas. While lipedema is primarily a woman's disease, the research on the condition has only in the last five years really taken off, so the causes and treatments are still in early research stages.

My Four Seasons is a testimony of life. A personal diary transformed into a profound but also fun lecture about how to face an illness with a positive mind; describing how the family and the friends play the most important role in recovery.

What would you do if it happened to you? If you awoke one day when you were twelve years old to be informed that your life was suddenly over? Well . . . Here is what I did. If you became the wealthiest person you would ever know just three and a half years later? What would that be like? Well, this is what it was like when it happened to me.

See how, throughout her life, she became a believer, and even with Kerry and Kaylynn's love and support, she had to find the strength elsewhere to get up each and every day to be the best mom she could be for Austin. Listen to how still, to this day, she struggles with negative emotions and guilt and needs to be reminded often that God is in control, and he will never forsake her, even when she feels she is alone.

This book is a reflection of a mother’s experience when her daughter, after a sudden severe headache, was diagnosed with a torn brain aneurysm and arteriovenous malformation in the cerebellum. TJ, Evie’s brother, also shares his experience.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

Nujeen Mustafa ha sedici anni e soffre di una grave forma di paralisi cerebrale che l'ha costretta su una sedia a rotelle e le ha impedito di frequentare la scuola pubblica. Ma questo non l'ha fermata: ha imparato l'inglese guardando le soap opera americane trasmesse dalla tv del suo paese e nello stesso modo ha studiato storia, letteratura, scienze.

Martin Hibbert was left paralysed from the waist down by the Manchester Arena bombing which killed twenty-two people on 22 May 2017. Martin’s teenage daughter Eve was one of the 940 injured, in Eve’s case, gravely. The dad from Bolton has since become a leading campaigner both for victims of the atrocity and those with spinal cord injuries. Determined to make a difference he took on the ultimate challenge, scaling Kilimanjaro in a wheelchair, becoming the second paraplegic to do so, and raising a million pounds for charity.

Carly-Jay Metcalfe was born with cystic fibrosis, survived a double-lung transplant at the age of 21 and faced a rare cancer at the age of 30. What she has endured should have killed her, but her humour, courage and optimism became her best survival skills. From her hospitalised childhood to her many friendships, loves and losses, Metcalfe shares the fickle nature of life with candour and warmth. She writes with compelling insight about organ donation, opioid addiction and survivor's guilt, while still managing to find joy amongst the wreckage.

Always With Me is a true story about the life of Moses Macias as he grew up in and out of the hospital for twenty-one years. He was born with spina bifida and cleft lip. As a result, he would have to endure dozens of surgeries as he would fight for his life growing up. Always With Me also details other struggles of growing up disabled such as bullying, depression, suicide, medical abuse, sexual abuse, and pain of receiving medical treatment throughout his life. Despite all the trauma he endures in life, he finds his faith in God.

How a mechanic rose above poverty and chronic anxiety to build a national enterprise and found peace with himself and his past in the process. Prepare to embark on a journey of emotions. This must-listen memoir explores the resilience of the human spirit. I literally could not stop reading From Turmoil to Triumph.

I wanted to write a book to uplift mentally ill people of the harshest variety, schizophrenic or schizoaffective like I have. I wanted to tell the story of my own life, like some people see me. I am not a pitiable sad case. I am a hero who’s gone on adventures. Sometimes I was unstable, but that is not the purpose of my story.

What if you found out in mid-life that you were autistic? Kathleen was diagnosed in midlife with autism, and in her new book, U Don’t Seem Autistic, she bravely shares her personal story. This is a story of empowerment by the discovery of autistic identity, at last! By sharing the pitfalls she has experienced up to mid-life and their relationship to autism, she hopes to help others to seek a diagnosis, as she states women are missed or misdiagnosed due to the gender inequities of diagnosis.

Follow the journey of Tanita Allen, a courageous Black woman confronting the challenges of Huntington's Disease. We Exist documents her harrowing two-year struggle for a diagnosis while living in a toxic NYC apartment that triggered the early onset of her condition. Learn how she wages an impossible, decade-long legal battle against those responsible, unveiling the staggering barriers faced by marginalized communities in both medical and legal systems.

My name is Christopher Miller, the view I happen to have is a view from a wheelchair. I live with spastic cerebral palsy which affects my mobility and speech. I believe that people with disabilities need to be involved in the political process. I just happen to have A View From a Seat.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

In this intimate story of relationship resilience, marine biologist Beth Mathews’s adventurous life as a professor and mother in Alaska is upended when her healthy husband is slammed by a rare type of stroke. Jim’s radical approach to recovery clashes with Beth’s instinct to keep him safe at home and sets them on a collision course as he insists on ambitious sailing expeditions with Beth and their young son in Alaska’s magnificent yet unforgiving waters.

Growing up in Mineral Wells, Texas during the 1950s and 60s was anything but idyllic for Walter Ashby. Due to a misdiagnosis and medical error, his sister Janie went from being a lively young girl to a shell of a person who required their parents’ attention 24 hours a day, every day. To add insult to injury, his parents received another blow: before Walter was six-years-old, he lost 98 percent of his vision, leaving him legally blind.

In Get in the Boat, Darlene Fuchs shares the powerful and poignant story of her father Richard's experience as a caregiver to his wife Gail during her decline into dementia. This memoir, based on the journals of Richard Sonnichsen, is a heart-wrenching yet inspiring exploration of the enduring power of love, faith, and resilience in the face of life's most difficult challenges.