Disability Memoir

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

When someone would tap along and rescue me from being sandwiched between these two hardbacks, sorry, did I frighten you? You never heard or seen a talking book. Well, me either. The majority of the time, I am the only one in the room, or shall I say, “on the shelf”? So many humans walk right past me, playing blind games by pretending not to see that the struggle is real. Talk about the lack of accessibility.

Have you ever wondered how a blind person pours a cup of coffee? Or how they and their guide dog know when it's safe to cross a busy road? When Lois Strachan lost her sight at the age of 21 years, she had to learn the answers to these and countless other questions of how to live as a blind person in a sighted world. In this delightfully quirky and entertaining book, Lois shares some of the secrets she discovered about how to live an “ordinary” life in an extraordinary way despite her disability.

You'll relate, you'll cry, and you'll want to learn more. A story of triumph over tragedy, again. In this moving tale, you'll follow Cristi Bundukamara's life as a blissful newlywed who hopes to give back to the world. Her family grows quickly in the form of both biological and adopted children. Cristi has all that she hoped for and more when a senseless drowning rocks her family. While struggling to pick up the pieces, more tragedy ensues and Cristi has to dig deep to keep moving forward.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

Medical aid in dying has been legal in New Mexico since 2021. This collection of stories about courageous terminally ill adults who have chosen medical aid in dying, is told with compassion and clarity. Dr. Sparks provides the service in New Mexico, one of 10 states, as well as Washington DC, where the practice is legal. NM currently has the most progressive law, and is the model for at least 17 other states seeking passage of similar legislation in 2024.

James Partridge was 18 years old in 1977 when his face and body were severely burned in a car accident. Refusing to succumb to society's expectations, James chose not to hide in the shadows, but to succeed despite his distinctive face and live a happy and hugely successful life, both personally and professionally. Face It tells the story of James' recovery and the work he has done ever since to support others with physical differences to cope with the isolation and discrimination they so often face.

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity.

Raising Will is a heartfelt, humbling memoir written by a Texan-turned-Minnesotan mother and child psychologist. Her heart breaks for Will when he is repeatedly banned from Fun Friday in first grade shortly after he is diagnosed with ADHD. The family zigzags through an obstacle course of therapy, medication side effects, tutoring, and sleepless nights, while shining a light on Will's inherent strength - blues guitar. Listeners will surely recognize themselves in this story and find solace, laughter, and hope as they celebrate the surprising blessings ADHD can bring.

Quadriplegics simply do not walk again - yet millions watched as Chris Norton defied incredible odds and took step by impossible step across his graduation stage. With his fiancée, Emily, by his side, those unbelievable steps became the start of an extraordinary journey for them both. Told from both of their unique perspectives, this moving story invites you to find, as Chris and Emily have, that God can transform our lowest points into life's greatest gifts.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

At 30 years old Bryan Bishop’s life was right on track: as the sidekick on The Adam Carolla Show, his career was taking off and, newly engaged, his personal life was soaring to new heights. Then he was diagnosed with an inoperable brain tumor. Suddenly Bryan’s promising future was looking at a troubling schedule of radiation and chemotherapy. But having found refuge in comedy, "Bald Bryan" recounts his alternately heartbreaking and hysterical experience of cancer treatment and recovery.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

Given an epilepsy diagnosis at age 49, Linda’s once solid life fell apart. Her seizures uncontrolled by medications and with no access to treatment, Linda had no choice but to seek help in another province. From 2016 to 2018, she travelled between BC and AB, spending up to four weeks in a hospital apart from family and friends.

I discover a "lost" aunt, separated from our family due to racism and discrimination against the disabled. She had a mental disability due to childhood meningitis. She was taken away in 1942 when all Japanese Americans were considered the enemy and imprisoned. She then became a "ward" of the state. We believed she had died but 70 years later found her alive and living a few miles from our family farm. How did she survive? Why was she kept hidden? How did both shame and resilience empower my family to forge forward in a land that did not want them?

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

Discover Linda Hoopes’ inspiring journey of resilience and triumph over macular degeneration in Co-Creating A Meaningful Life With Macular Degeneration. From fear to determination, her story will captivate your heart and empower you to embrace life’s challenges. Join her on this transformative path and find the strength to overcome obstacles, live fully and cherish every moment. Hoopes honestly shares the physical, emotional and spiritual transitions necessary to not only meet difficult challenges but how to thrive in spite of them.