Disability Memoir

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

My journey with mental illness, specifically bipolar disorder, has woven itself throughout my life for 40 years. Whether it was active, or dormant, it has always lurked in the shadows. But, this illness, like any illness, can be managed and maintained.This story is particularly relevant for today's society. It is our charge to know a segment of our society who, for the most part, is misunderstood. When the Brakes Fail provides a forum for understanding the myths, the injustices, and the stigma of mental illness.

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer's. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer's at the age of 67. Her dream to grow closer to him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father's fate.

When Markisha was pregnant, the doctors found out her baby has anencephaly and told her the best option she has was to get an abortion. She refused and kept going with the pregnancy. The doctors gave the baby a short time after birth to live, but she lived up to two and a half years old. Her name was Miracle.

Born four weeks premature and weighing little more than five pounds, Scott A. McCreight had a rough start and uncertain future. He was placed for adoption, but the good news didn’t last long: shortly after, Scott was diagnosed with cerebral palsy. Developmental delays permeated his childhood, the odds for a “normal” life seemingly stacked against him.

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.

“Canal dói?” “O que é que eles fazem no Japão?” “Os Menudos são legais?” Stella Estrela não se dedica a responder nenhum desses questionamentos, mas a apresentar a autora dessa lista tão peculiar de perguntas. Stella nasceu com a síndrome de Williams-Beuren, uma desordem genética rara que impôs, de saída, enormes desafios a ela e a seus pais.

From our family to yours, here are humorous stories from our crazy past, mixed with ideas for handling some of the issues facing a family raising kids with autism. Inside you will find ideas for stimming aids, dietary help, and even links to companies who hire adults with autism. Humor, hope, and help for families like yours traveling Through the Wormhole.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

Robert was a young man struggling to make it on his own when in 1990, he suffered a violent and traumatic experience when someone put a bullet through his brain. Robert tells the amazing story of survival during a time when life shriveled to dark emptiness and his future seemed hopeless.

When I found out I had cancer, I only knew one person who had beat it, and she did not come to mind. Finding out the president had beat it without chemo or radiation gave me hope. I feel my assistance was critical to my beating cancer. Your own research and knowledge, along with your gut feelings, will help guide you. This book is my belief, and I feel cancer is beatable because I was able to beat it. I believe thinking out of the box is sometimes the solution.

Escrito quando Naoki Higashida tinha apenas 13 anos, o conjunto de ensaios reunidos neste audiolivro conta, do ponto de vista do próprio Higashida, a experiência de ser autista. Preso em seu mundo individual, muitas vezes ele exibe comportamentos vistos como estranhos, peculiares, “inadequados”. Seja repetindo palavras e frases aparentemente sem sentido ou evitando contato visual com outras pessoas, Naoki tem uma enorme dificuldade de se comunicar e de socializar.

Adversity Builds Character is the story of a young man's life struggles to find his way through the trials and tribulations of family turmoil, self-determination, and personal judgment. This transformational life experience, like so many, demonstrates the triumph of the human spirit over the pitfalls in our modern world. From a divorce wrecked family life through the upheavals of a shattered home brought on by a disease-ridden single mom, Thomas Ufert is blessed with the first of many second chances granted to him by his Godmother and her family.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Get ready to laugh, relate, and discover the hidden gems that come with a brain wired for Focused Frenzy! In this captivating audiobook, discover the fascinating world of an ADHD brain and its unique perspectives, creativity, and out-of-the-box thinking. With a playful and witty tone, this eBook explores how ADHD individuals navigate daily life, showcasing the humor that comes with embracing their extraordinary minds.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

Here, inside of my second book, you will hear more stories from the gallery of my life. I am a South Californian gentleman living with disabilities—I was diagnosed with both cerebral palsy and scoliosis as a toddler. I am a writer who uses an augmentative alternative communication (AAC) device to speak. I wrote this sequel so that I could share more of my life with you, chronicling events from shortly after my high school graduation in 1991 all the way up to my 40th birthday in 2010.

Justin Adkins was a star football player in high school with good grades and lots of friends. Then, one day he woke up in a hospital in excruciating pain, unable to walk or talk. No matter how tormenting life became, Justin’s parents fought alongside their son. Pulling together in this unfamiliar territory, the family explored the options available for a teen with a disability, and the future ahead of him. The listener will be inspired by this story of true perseverance.