Disability Memoir

Negli ultimi decenni si è verificata una profonda rivoluzione nella cura della sclerosi multipla, una disfunzione del sistema immunitario che colpisce 122.000 italiani e 2,5 milioni di persone nel mondo. Grazie allo sviluppo di nuovi farmaci sempre più efficaci e a fondamentali scoperte, dai fattori di rischio genetici e ambientali al ruolo rigenerativo delle cellule staminali nel cervello, ora, finalmente, la vita delle persone che soffrono di questa malattia è sempre più vicina alla normalità.

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

When a tragic accident crushes her dreams, can a young woman fight to thrive once again? As a teen growing up in the '80s, Jenny Smith loved life. But, when a spinal cord injury paralyzed her from the chest down, her days of gymnastics and playing music came to an agonizing end. Completely reliant on others for her most basic needs, privacy and independence became things of the past. Refusing to give up, Jenny struggled along the exhausting, painful, and endless road to living as a quadriplegic.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

They say if you want to make God smile, tell him you have a plan. Dwight’s plan was to live his dream, teach math, coach football, and build a comfortable life for himself. Fate had other things in store for him. The story of Dwight’s physical and emotional journey from life as an able-bodied young man chasing his dreams only to have his world turned upside down by the thoughtless act of a 71-year-old drunk driver.

In No Bad Days, JT details the incredible story of how he overcame what seemed like insurmountable odds and shares the many invaluable lessons he has learned throughout his life in the hope that others might reach their full potential. These lessons include how to: find your tribe, pull off the label, stretch yourself, listen to others, and learn to fall. JT’s improbable life story is evidence that regardless of the mental and physical challenges you might face, you can defy the odds to create the life you want and accomplish the things you’ve only dreamed about.

Essere una donna disabile in un mondo in cui l'immagine femminile appare sempre patinata e perfetta non è facile, ma Antonella Ferrari, attrice e ballerina, malata di sclerosi multipla, non si è mai arresa tanto da diventare un punto di riferimento, una fonte di ispirazione per tante persone meno fortunate. "Mi sono beccata tantissime porte in faccia, tantissime delusioni ma dovevo andare avanti anche per tutti quelli che vivono bloccati per colpa di una malattia."

You are more than your limits. Choosing to see herself as more than a person with a disability and wheelchair user, Lolo chooses to live a bold and courageous life now because representation matters. She created this intersectional guide to provide tools for people with disabilities to thrive in personal growth, independence, and community building. Add this guide to your list of inclusion books!

At 90 years old and blind, Lorraine decided there was never a better time to get started as a writer. Juggling career, marriage, motherhood, and staying a vibrant senior demands constant skill upgrading. Lorraine’s early childhood development expertise, for instance, was perfected during her 81 months of pregnancy. As a first generation of Russian immigrant parents, Lorraine’s daily walk with God is a testament to her belief and love-filled life. She says, “Hope is not a plan, but it is a promise that’s given when faith and belief become action.”

Frederick Moore spent his 1950s Minneapolis childhood obsessively teaching himself guitar and writing songs. In the 1960s, his bands Skogie and the Flaming Pachucos reached local stardom. After, they put everything they had into their cars and caravanned to Los Angeles. From a garage in suburban Arleta, they evolved Skogie into a new band called The Kats. In the 1980s, The Kats sold out every major club in Los Angeles.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

No one would ever guess that simply hanging curtains could be life-changing! In the blink of an eye, Paula's world turned upside down as a broken leg morphed into life threatening events that pushed her reality into a darkness we only see in movies. Legless tells the story of Paula's fight to triumph over heartbreaking trauma while depression and suffering snapped at her desire to live. Unwilling to surrender for the sake of her family, she dug deep into the meaning of life at every setback and found herself changed, transformed and seeing herself through the eyes of a new normal.

The S Word is the raw and compelling true story of a girl coming of age raised by a mother with a mental illness, and who nearly suffocates in the silence she was taught to value above all else - until she finally finds the strength to break free of the secrets binding her and save herself. The S Word is a book for anyone who may be keeping secrets...for children too little to know they warrant a voice...for teenagers too confused to think they have a choice...for adults too overwhelmed to do what’s right.

The Umbrella Picker tells the true story of a woman who was lost for 45 years until she learned that she is Autistic. After a long and relentless journey of searching for answers, the hand of fate finally revealed to her what she had waited a lifetime for. Learning she was Autistic was life changing. She is no longer lost, and having found her own, unique way, Jane has written the (brutally honest!) book she wished was available to her years earlier.

Her Name Was Lola is the story of Trish Ryan’s triumphant recovery from a stroke that should have killed her. She had a successful career in the entertainment industry for over 30 years until May 5th, 2017, when she suffered a severe stroke that changed her life forever. Living a very fast-paced life had not prepared her for when it all came to a grinding halt. Lost and confused with no roadmap to follow, she relied on her faith to show her the way to embrace what happened and move forward.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

In October of 2008, I was airlifted to Erlanger Hospital in Chattanooga, TN, after a head-on collision with an SUV while riding a motorcycle. When I woke up, I was told I would never walk again or have full use of my hands. Seventy-eight screws, 13 plates, 25 units of blood, and more than 400 stitches and staples later, I became very familiar with physical pain and haven’t had a pain-free day since. That physical battle was harder than I could even begin to explain, but it doesn’t really come close to the one that I went through inside of myself over the years that followed.

Lillian was a college freshman, a promising theater major facing the challenge of Stargardt’s disease, a condition that was causing her to go blind. When, in the fall of 2009, Lillian became sick, she assured her parents it was just the flu. Four days later she was in the university hospital, relying on a machine to breathe for her. Based on her father’s journal, this memoir describes what it’s like to live through a parent’s worst nightmare, conveying the heart-wrenching ups and downs of Lillian’s time in the hospital.

Kamata's adventures with her teen—who happens to be deaf, with cerebral palsy, and in a wheelchair—through subterranean Tennessee, to the islands of Japan, and to the top of the Eiffel Tower ultimately lead to a daughter's increasing independence, a mother letting go of expectations, and advocacy for travel which prohibits discrimination.