Disability Memoir

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

After three long years, Johnny’s young son, Sam, experiences a breakthrough. But even as calm comes to Sam's body, the illness makes off with his mind. Violent outbursts, strange obsessions - what has happened to his sweet boy? Cinematically weaving three generations of fatherhood, Remember, You’re the Greatest is a memoir of hard questions. Of unexpected joy in the ache of mystery. And the power of a special needs child to teach a father what greatness truly looks like.

In 2004, Mindy begins hearing a voice in her head, someone she calls "Joe," and sees signs everywhere that hold mysterious clues only for her. What she doesn't know at the time is that she is experiencing her first schizophrenic episode. For the next decade, she oscillates between two worlds -- a normal life and a secret voice-filled one -- until she begins the journey of merging her two worlds back into one. Becoming Whole documents her onset of schizophrenia and the subsequent years spent learning about it and how to live with it. It is her journey to find solace.

This book is written by the husband of a stroke victim. The husband is the caregiver of 25 years to his wife in helping her in her battle to recovery from a massive stroke. It describes some of her challenges over the years and the tools that she has used to meet these challenges to make her life easier in the world that she knows of it today.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.

From Beneath the Ice is more than a book, it is a triumph of the human spirit. Todd’s mind was hijacked, but he slowly took the helm and charted a new course. It was a difficult process for him to write this book, but in the end, it was empowering. Publishing was even harder, knowing that his darkest moments would be ‘out there’ for the world to see. He knew his primary focus was to help people and contribute to ending the stigma about mental illness. To do this, he had to be more courageous than he had ever been.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.